It's only an N=1, but I've been on rivaroxaban for 8 years and warfarin for 10 years previous to that and my ME/CFS has actually gotten worse...
I was always too ill to participate in this thread whenever it was active but I have had a number of thoughts and questions that I would still...
Since entering perimenopause, I've been having this very thing. A week after one of only two periods in 2022, that icky flu-like feeling began to...
I know, right? I read Matthew Walker's Why We Sleep a few years ago but like most neuropsychs he so overeggs our knowledge about what we actually...
I use either Gron chocolates or Tasty's gummies. I wasn't sure if it was ok to link to their websites from here given that S4ME is a UK site and...
HRT is a tricky one for me. Because of my history of blood clots, my gyno refused to prescribe even the Estradiol patch despite the fact that on...
Ah, yes. I sleep through the night maybe once or twice a year going on 15 years or more now. And perimenopause has just made it worse. I've had...
I've written in an earlier post that I experienced an improvement in my symptoms while on low-dose heparin. But like you, it was part of a number...
Why do these people think that I give a rat's f*** about what bubble I fill in on a questionnaire?! What I care about is, how much time can I...
Isn't the brain, you know, sorta, kinda part of the body? Do they think if they throw in/separate the brain from the body it sounds, somehow, more...
Ah yes, I had forgotten about that. I have sensed over the years that we have a bit of a reputation for being "the mean kids" (not just among...
Yes, as an American I'm both surprised and a little embarrassed. What's going on with ME Action?! Solve?! Even, er, the Other Forum? I dunno....
THIS is my main problem with sewing. The sewing bit isn't too hard for me. It's the cutting patterns out that absolutely floors me. I always...
I actually just listened to Lisa Sanders's book Every Patient is a Story a couple of weeks ago. For the most part it was a very interesting look...
OMG thank you for this link! I've spent the last half hour watching his videos and haven't laughed so hard in a long time. Laughed so hard it...
Is this the first group to do iCPET aside from Systrom's group? I've been wondering why nobody else was trying to replicate Systrom's iCPET and...
If anyone is interested in listening to this article, it was recently Nature's "audio long read": [MEDIA]
@sarahtyson Thanks for stopping by again to this thread and sharing your thoughts. It's really helpful for us as patients and, I think, for you...
Facebook encourages one to fund-raise for their birthday. The first year they suggested it, I chose the Solve ME/CFS Initiative (which was also...
Thank you so much for this, @Grigor. I'm going through the worst, most sustained crash since The Great Crash of Autumn 2020 and it's been rough....
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