It's still a very blunt tool but I have been using an old-school pedometer clipped to my underwear for about 8 years now and it seems to be a...
The exercise in question is called the Brandt-Daroff exercise. I have had annual bouts of BPV since July of 2000 and do a modified version of the...
And maybe Dr Selinger can explain that this is not a disease of feeling tired? :oops:
That was precisely what they were doing.
So, uh, how did the patients rank it?
This is truly one of the scandals of pain research. If they want to, there are objective measures available such as blinded actigraphs. They...
Yes. @Jonathan Edwards has mentioned in his skepticism of the use of saline as a treatment to build blood volume that saline would simply make...
As always, this is N=1, so take it for what it’s worth, but a few thoughts: I was diagnosed with ME/CFS in 2002. In 2006 I presented to the ER...
I actually won my disability appeal in 2003 based on my neurocognitive testing, which was the only "objective" evidence of impairment I had at the...
My partner's response to your comment was "so everyone's a winner; patients now only suffer through 2 hours of B***S*** instead of 16 and Darnell...
Just a little but exciting follow up to this thread: Hippocampus nominated this essay for a Pushcart Prize! Outside of the literary world, the...
Beth Darnell is an interesting one. She actually does advocate NOT tapering pain patients off of opioids. In 2017 when my state of Oregon was...
I'm on a fairly high level of levothyroxine atm (100mg/day) and I'm really ambivalent about it. I've never seen any improvement in my symptoms...
Has anybody seen any studies on reduced nocturnal blood pressure in ME/CFS? When I click on that link, it simply takes me to a Science Direct...
This. I've been thinking this very thing as we've all been going on about NICE guidelines. While it sounds like NICE have done the right thing...
I think Andrew Goddard's remarks as well as Alaistar Miller's on Radio 4 just amply demonstrated that Foucault's concept of the medical gaze was...
I agree that CBT is more practical (and why I found it more helpful than psychotherapy). But while they may borrow the outward forms and language...
Just a point of pedantry on my part: it started as a blog/website in 2003 but the forum did not begin until 2009.
How would you define "active" members? I read every day but rarely comment as I'm too ill. I feel pretty damn active but the number of my posts...
I've always thought that psychotherapy is far closer to literary analysis than it is medicine. Now, I do enjoy me some good lit crit--both...
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