Yes, as a kid I got the same thing. "Growing pains" or that it was psychosomatic. Thankfully as an adult, my PCPs (aka GPs) have always taken my...
While doing some research on the Interwebz on how to limit the ill-effects of being bedbound, I came across this article for nurses on a site...
Random thoughts (beyond "oh FFS" and problems others have already mentioned): Chronic pain is not the same as acute pain. And the VAS is mostly...
Yeah, the more I thought about @Simon M 's post, the more it made me think of all the weird data my body gives off daily. Neither me nor my doctor...
I had frequent cold/flu from 10 years old onward -- enough so that I usually missed about 20+ days of school each year. Looking back now, I can't...
Precisely. Which means if those of us who have chronic pain and just happen to also be hypermobile are being misdiagnosed with a collagen...
Interesting. I've always thought the Beighton Scale seemed like a remarkably low bar for deciding on a disease state or structural problem....
How would you define that? What would that look like to you? Would, say, frequent dislocations be part of that?
And avoiding FODMAPs. Several years ago I saw a piece at Medscape titled "Why telling your IBS patients to just eat more fiber may be bad advice."...
I logged on just so I could "like" this comment. It gave me a good chuckle as it is so spot on.
FWIW, was looking for an overview of whatever actual biological evidence there is for central sensitization and came across this recent review by...
Yes. Though it's a bit more complicated in my case as I'm extremely right-handed as I've had four fractures among my fingers and my arm [EDIT: on...
I too have bad walking days and good walking days. Was even once passed on the street by an old lady with a cane while walking from the streetcar....
In addition to comments upthread about the SMC, "people who like to imagine they're part of some sophisticated intellectual elite, but want simple...
How is returning to full-time school or employment not an objective metric -- and probably among the most meaningful metrics at that? Even if the...
The point is not whether the remission of Jen or the LP patients is real. They're both very real. LP patients certainly had metrics like "I...
I actually stopped growing at age 11. The injuries started at 10. I grew one more inch between 10 and 11, when I peaked at 60 inches. The...
EDS Type 3 is a clinical diagnosis. She was the only doctor in my area with any expertise in EDS so I was sent to her. While I have a niece who,...
What may also be interesting is that I began to develop ME/CFS symptoms not long after I began injuring a lot.
Age 40. My GP was the one who wanted to refer me to the medical geneticist. As I mentioned, while I was I was always very flexible and had gut...
Separate names with a comma.
