Hm that's an interesting new way to look at it, I never thought about this possibility. I experience the same issue with more than ~6 hours of...
I wonder if there is some curse on ME/CFS. Not only can't it be treated, but once we manage to get a researcher working in the field, they will...
I have been working in university research projects for several years and my experience is the following. During official meetings with an agenda,...
Ron Davis mentions supplements briefly in a panel session at this timeline, but he was rather (or completely) cryptic about the details...
The impact that the placebo effect can have depends on the type and degree of illness. Just for the sake of example, a paraplegic isn't suddenly...
Couldn't be further from the truth. Actually receiving a CFS diagnosis and especially any wage benefits from CFS is almost impossible, at least in...
I agree in principle with most of what you said. The fact that ME/CFS can remit spontaneously is indeed always a possibility and there could be a...
I've had quite a few supplements produce temporary results over the years, but they almost always stop working. I don't believe it's placebo...
I also find it really interesting that both Jen and also Jeff (unless I remember wrong) experienced an instant remission of POTS symptoms...
Actually one of the first patients that Fluge/Mella studied had cancer and ME/CFS, which is why she received rituximab. This patient had an...
Not if ME is a consequence of OI/POTS/ANS dysfunction, which we cannot rule out. Only time will tell if the reported recoveries will last, which...
Actually Jen went maximum public not with her recovery, but with her illness long before that. Now when she already is a public figure it's a bit...
I agree that high titers don't imply a "persistent active infection", which is the term that someone used few posts above. And yeah, it wouldn't...
If I remember correctly, Jeff had exactly the same thing as Jen, massively elevated viral titers (against EBV?), but all this cleared up after the...
I could be wrong but I'm not sure the PACErs will engage in this argument or with her story at all. Some lower profile Twitter trolls will for...
Why? Jen's diagnosis of ME/CFS was made on valid grounds and she had all the typical symptoms, so everything described in Unrest is still more or...
There are for sure a set of symptoms in CCI that do not typically present in ME/CFS. For example a quick worsening related to a change of...
Recovered, whether temporarily or permanently, to me it's amazing news that someone with such a severe case of the disease has actually improved...
I was put on a course of fluoroquinolones a decade ago for an infection and it improved my ME/CFS symptoms somewhat. Back then my symptoms were...
It wouldn't actually surprise me at all if the nanoneedle test would also respond to other diseases on the same spectrum as ME/CFS. Robert Naviaux...
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