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  1. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    I will DM you at some point then. Hope you feel better soon
    Post by: V.R.T., Oct 8, 2023 in forum: UK clinics and doctors
  2. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    You're welcome to message me with your experience if you'd rather.
    Post by: V.R.T., Oct 3, 2023 in forum: UK clinics and doctors
  3. V.R.T.
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    I have looked into this drug and it's supposed to slow the effects of ALS not reverse it. Would it be doing similar here, i.e preventing...
    Post by: V.R.T., Sep 20, 2023 in forum: ME/CFS research
  4. V.R.T.
    Post

    Sudden realisation(trigger warning)

    Thank you. I apologise for derailing the conversation here. I have been in poor mental health, and should have heeded the trigger warning.
    Post by: V.R.T., Sep 3, 2023 in forum: General ME/CFS discussion
  5. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Thanks everybody!
    Post by: V.R.T., Sep 3, 2023 in forum: UK clinics and doctors
  6. V.R.T.
    Post

    Sudden realisation(trigger warning)

    I just struggle to accept that I asked for help so many times and was convinced I was physically ill in spite of them, and then my GP gaslit me...
    Post by: V.R.T., Sep 3, 2023 in forum: General ME/CFS discussion
  7. V.R.T.
    Post

    Sudden realisation(trigger warning)

    Do you all really believe there is no hope of a treatment? That Scheibenbogen and other European researcher's will turn up nothing in their...
    Post by: V.R.T., Sep 2, 2023 in forum: General ME/CFS discussion
  8. V.R.T.
    Thread

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Hey all My cardiologist (Dr Gall) is talking about referring me to one or more of these specialists. Has anyone seen them and were they helpful?...
    Thread by: V.R.T., Sep 2, 2023, 24 replies, in forum: UK clinics and doctors
  9. V.R.T.
    Post

    Well-known, famous people with ME/CFS (public thread)

    Running utterly destabilised my mild ME and I never recovered. Seeing stuff like this is so worrying.
    Post by: V.R.T., Aug 30, 2023 in forum: General ME/CFS discussion
  10. V.R.T.
    Post

    David Systrom, researcher, Brigham and Women's Hospital, USA

    Is this the sort of thing that could be tested for easily? Has it been ruled out for most pwME?
    Post by: V.R.T., Jul 25, 2023 in forum: ME/CFS research news
  11. V.R.T.
    Post

    Poll - Have You Ever Believed In Psychosomatic Illness?

    I believed in it, though I didn't think it applied to me for a long time despite what some docs had said. Then I became convinced I might be...
    Post by: V.R.T., Jul 17, 2023 in forum: General ME/CFS news
  12. V.R.T.
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    If I hadn't listened to this shit, and excercised and pushed, I would be able to go downstairs right now, make myself breakfast and wander into...
    Post by: V.R.T., Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  13. V.R.T.
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    It's just endless isn't it? Reading what Chalder said in the Graun about lives being destroyed, while lying in bed because my life has been...
    Post by: V.R.T., Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  14. V.R.T.
    Post

    Preprint Increased circulating fibronectin, depletion of natural IgM and heightened EBV, HSV-1 reactivation in ME/CFS and long COVID, 2023, Liu, Prusty et al

    Agreed, funding and replication studies are desperately needed And I avoid them like the plague after the one I was speaking about.
    Post by: V.R.T., Jun 30, 2023 in forum: ME/CFS research
  15. V.R.T.
    Post

    Preprint Increased circulating fibronectin, depletion of natural IgM and heightened EBV, HSV-1 reactivation in ME/CFS and long COVID, 2023, Liu, Prusty et al

    Oh he was a terrible doctor, at least as far as I was concerned. I came to him because I had deteriorated to moderate from excercise and he tried...
    Post by: V.R.T., Jun 30, 2023 in forum: ME/CFS research
  16. V.R.T.
    Post

    Preprint Increased circulating fibronectin, depletion of natural IgM and heightened EBV, HSV-1 reactivation in ME/CFS and long COVID, 2023, Liu, Prusty et al

    It seems to me that the ME research community cannot afford to be overhyping admittedly interesting findings like this. I have literally had a bps...
    Post by: V.R.T., Jun 30, 2023 in forum: ME/CFS research
  17. V.R.T.
    Post

    Preprint Increased circulating fibronectin, depletion of natural IgM and heightened EBV, HSV-1 reactivation in ME/CFS and long COVID, 2023, Liu, Prusty et al

    Why did he have to hype this so hard? What was the point of giving desperate people false hope?
    Post by: V.R.T., Jun 30, 2023 in forum: ME/CFS research
  18. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Honestly between this and P.T. Prusty's Marvelous Biomarker Circus I can't decide which is the most infuriating!
    Post by: V.R.T., Jun 13, 2023 in forum: ME/CFS research news
  19. V.R.T.
    Post

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    This is precisely the kind of experience we should collect - currently stories like this are just floating around on twitter/Reddit etc. If we had...
    Post by: V.R.T., May 30, 2023 in forum: General Advocacy Discussions
  20. V.R.T.
    Post

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    I agree wholeheartedly. For this project I was thinking about people who have undergone GET or had informal advice etc. who accepted the mind body...
    Post by: V.R.T., May 29, 2023 in forum: General Advocacy Discussions
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