By stopping the use of GET and curative CBT which is widely reported to lead to deterioration. Obviously this won't protect everybody but I and...
I am obviously not a scientist but I am extremely skeptical about the capability of a placebo response to induce a large improvement in an illness...
Agree about uncertainty from a practical perspective. From a subjective perspective it's much more tricky. Since I became severe, I have lost...
So is this paper arguing for two entirely separate diseases? Or is this another situation with different stages or states being proposed as we...
Yes I can see that, although for a truly effective treatment that could significantly reduce or block PEM the tradeoff would likely be worth it....
So the 'step' of severe ME might involve a shifting out of the step where the HV3-30 is increased and into a different process with a different...
Different starter pathways is interesting. But how could severe ME have a different starter pathway if some people start off mild and stay that...
This is a fascinating finding and I hope it is the first step on a road to getting all of us some answers, but I do find the fact it wasn't...
Except they don't have effective treatments, they have a bag of magic beans and a very nice invisible shirt. If we have scientific proof of...
I understand your pessimism here, and maybe a billion is a stretch but if, for example, DecodeME pans out and in a year or a few years after...
Hi, Chris - From my perspective, typing speed and accuracy are very valuable measurements to look into. I am a writer and like probably Every...
Perhaps. But he has certainly been smart enough to distance himself from ME in the last decade. If he stays and a biomarker/treatment is found he...
Perhaps, but I take serious issue with you saying that it is 'fair' for patients to be ignored for using the wrong name. I'm not really interested...
Why should the onus be on us to use the precisely correct term to prove we are good little patients and not hysterical secondary gain seekers? The...
The long covid clinic I was under was Wesselyite through and through. Hopefully DecodeME points the way and the good SirDoctorProfessor quietly...
This, I think, is a huge problem with no clear solution. The amount of stigma that needs to be present for someone like yourself to be afraid of...
The repeated use of 'chronic fatigue syndrome' and the other mental health conditions mentioned don't exactly fill me with hope...
Is anyone watching? I registered but can't spare the spoons to watch right now.
Yes there are absolutely studies that could do with replication attempts for this and other reasons. I think this would be a good use of...
My experience with a private rheumatologist was that he listened to my story of worsening through exercise, prescribed GET which i declined, did a...
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