Well that sample size is disappointing. I hope they try this with a much bigger cohort.
This is the whole problem with this field. No one ever tries to replicate anything. This could be huge or it could be nothing but without...
From the thread about the NIH conference in May.
Thank you. I haven't messaged with Paul. I remember seeing that he had been inundated with responses about drug trials and the like, and was...
Thank you! That sounds promising. But I'm not entirely clear what 'subscribed to the RECOVER network' means. Does it mean he is eligible to apply...
Very interesting thanks. What's the latest we've heard from Hwang? Is it just a case of wait and see? I'm excited to see where this goes next! I...
One thing that drives me insane is how high the threshold for quality evidence is for us and how insanely low it is for these people...
I voted yes because of the Wust thing. I think its early days and they still could well find something big through LC research if it's done right....
We have a decent number of interesting findings that need verification/falsification. As in small trials that have not been followed up on over...
Naltrexone actually reduces cravings and removes the euphoric effect of intoxication, meaning you no longer want to get drunk. The drug you're...
Thank you Andy, I had missed that one. A futher question, and you're probably the person to ask it - is it possible that DecodeME could...
Doctors are trained by the system. The NHS is institutionally biased against pwME and other disorders they consider functional. Doctors are...
Do you have any more info on this? I have heard of the WASF3 finding and the fact the researcher wanted to do a drug trial (als drug?) but not of...
I don't know if I can move past it. I have a supportive partner, parents and a few good friends who've stuck by me. A lot of people bailed or...
Bit of a sidebar but I just want to point out that this in combination with my doctor's gaslighting was a big factor in me doing couch to 5k and...
And herein lies so much of the problem. Ranty person (whoever they may have been...) used their influence in order to sway NICE to disregard the...
Im really sorry this happened to you. I think the only way to change patient experiences is for there to be mandatory training for all physicians...
Absolutely insane that anyone can look at the facts of this case and come to the conclusion that nothing could have been done. What a fucking joke.
Thanks for clarifying about NICE. To be clear I meant that it would not be necessary to wait for the results of the LIFT trial to do a UK LDN and...
I think LDN/Mestinon are already so widely used/prescribed that I don't think waiting for the trial results would be necessary in that case. I...
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