No word from the Observer so i assume they won't be publishing. Not very happy with myself for sending it off before i could read most of the...
I'd like to offer a dissenting perspective. I am absolutely traumatised, completely and utterly traumatised by my interactions with the system....
Thank you everyone for your feedback. Unfortunately I already sent the letter so I can't include any of it.:banghead::banghead: But it means a...
Letter to observer - which draft is better im undecided? Not sure if my paragraph on Nice and the low quality research is 100% accurate. Can...
I couldn't agree more. I am not a legal minded person but doctors need to face professional consequences for psychologising ME and other chronic...
I am absolutely fuming about Miller's piece. Shame on the Guardian for allowing him to use Maeve's death to spread his gaslighting double talk...
Any idea what they might be referring to here? Like do they have drugs in mind or is it just, this seems to help so lets see how its helping and...
Yeah maybe. Like he's so angry that we dared criticise his dogshit study he's decided to leave us in the dust and tell everyone we're not even...
Yeah I hope you're wrong but it seems like a distinct possibility. Unless they have found it helps but it's not a one and done thing like they...
In the early days they were talking a lot about bc007 improving red blood cell deformities and increasing tissue oxygenation or something along...
Its completely irresponsible! Of course a small proportion of people will stay worse after a CPET - all intense exercise carries that risk for...
Is he fucking kidding? After all those years of studying it? I mean my expectations were low as possible post intramural study but Nath has broken...
I'm not trying to change their minds. At this point I am concerned that even a biomarker and treatment won't change these quacks mind as they've...
Thanks, that's very clear. Fingers and toes crossed then I suppose!
I recently had an infuriating run in with a doctor online who was going on and on about the 'well documented' mental health connection with ME....
I'd like to ask you a little bit more about this if you dont mind: Could a drug to order really be made available so quickly? I was under the...
I understand. I am certainly not advocating for gung ho administration of anything and everything. I am afraid im out of spoons so cant reply further
We are in agreement there!
I do agree with a lot of what you say and I sympathise with your concern about safety for trial participants. And I'm sorry to hear about the...
Frustrating non answer. I've been so curious as to why they are trying this. And wishing it was a shorter trial - 2029!! End date! But interested...
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