Since you ask, here are some examples of projects I would try and fund if I had the capital: Replication studies on small but promsing ME and...
Okay that's fair enough. But so many of our medical professional advocates do seem to believe that we are simply getting no help, when the reality...
Dr Edwards, I speak for all of us who have been harmed by medical neglect and gaslighting when I say that is something that the NHS can do: teach...
This idea is fantastic, and I really hope you lot can make it happen!
To be clear about yesterday, I never meant to argue that we had a clear case of research misconduct. I am outraged that lying to and decieving...
I don't see how using a biomedical study which participants have been promised will move the field of ME research forward and help find biomarkers...
Okay but the way that a BPS researcher took over this biomedical trial of ME patients and twisted it to fit a psychological/psychosomatic lens is...
Just because the establishment is reluctant to address misconduct doesn't mean we shouldn't be very clear about what has happened, and if that...
So much good news this week :banghead:
Every time I see that scale I think about her 'that must be a very healthy anxious person' comment about someone worsened by GET. Every use of...
Yeah this is now looking like the medical research equivalent of regulatory capture. It's deeply disturbing and should never have been allowed to...
The Decode ME project has a huge amount of patient trust, to the extent that I answered fully about my mental health history in the questionnaire,...
I am trapped on pregablin (75mg X2 daily) after five years. I went on it for 'anxiety' (actually ME related symptoms) and planned to be on it for...
I will say it again: there needs to be a fresh push to expose these people for what they are, a group effort of advocacy showing what these people...
As a good literature student I knew my Freud and trauma theory, and was well informed on mental health issues due to suffering and having friends...
It's strange watching this unfold in the UK, where for like 1-2 years there has been no guidance apart from don't mention covid it's over...
I mean when I had depression and not ME (as far as I know, it's all a bit up in the air looking back) I felt miserable when I was out in the...
Is there any mention of the drugs that they have said might benefit studying? I seem to recall they said they had candidates.
From the NIH press release “We think that the immune activation is affecting the brain in various ways, causing biochemical changes and...
Surely the recent Wust paper in long covid did find mitochondrial dysfunction and cell necrosis in people with ME type long covid post exercise...
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