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  1. Grigor
    Post

    News from The Netherlands

    Did they mention somewhere that they applied for funding?
    Post by: Grigor, Dec 20, 2023 in forum: Regional news
  2. Grigor
    Post

    The Netherlands: Paediatrician Elise van de Putte

    Thanks. I'll post my response here as well. It's quite something that she admits the emotional harm her work caused. Unfortunately she only says...
    Post by: Grigor, Dec 18, 2023 in forum: Other clinics and doctors
  3. Grigor
    Post

    News from The Netherlands

    Thanks. I was about to share it here. It's quite something that she admits the emotional harm her work caused. Unfortunately she only says that it...
    Post by: Grigor, Dec 17, 2023 in forum: Regional news
  4. Grigor
    Post

    Autonomic dysfunction and exercise intolerance in post-COVID-19 - An as yet underestimated organ system?

    "psycho-pathophysiological model" Sigh. [MEDIA]
    Post by: Grigor, Dec 16, 2023 in forum: Long Covid research
  5. Grigor
    Thread

    Autonomic dysfunction and exercise intolerance in post-COVID-19 - An as yet underestimated organ system?

    Schwendinger a 1, V.N. Looser b 1, M. Gerber b 2, A. Schmidt-Trucksäss Dvision of Sports and Exercise Medicine. Abstract: Individuals recovering...
    Thread by: Grigor, Dec 16, 2023, 4 replies, in forum: Long Covid research
  6. Grigor
    Post

    Targeting persistent fatigue ... in adolescents and young adults with a fatigue syndrome or rheumatic condition... 2023 Vroegindeweij et al

    I wrote a post about it on LinkedIn and tagged the author. I hope she gets to read it......
    Post by: Grigor, Dec 14, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Grigor
    Post

    Targeting persistent fatigue ... in adolescents and young adults with a fatigue syndrome or rheumatic condition... 2023 Vroegindeweij et al

    Not surprising that the FITNET authors are still hyping CBT as effective eventhough it's a sinking ship. Quite painful to read. They're also...
    Post by: Grigor, Dec 13, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Grigor
    Post

    In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al

    Yeah the latter is my guess as well. Thanks Andy.
    Post by: Grigor, Dec 12, 2023 in forum: ME/CFS research
  9. Grigor
    Post

    In vitro B cell experiments explore the role of CD24, CD38 and energy metabolism in ME/CFS, 2023, Armstrong et al

    Is this new data? Haven't seen Fane Mensah doing research into ME for a while. Sorry not able to read well today.
    Post by: Grigor, Dec 12, 2023 in forum: ME/CFS research
  10. Grigor
    Post

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Talk by Hans Knoop about the ReCoVer trial at the Long-COVID congress in Germany. You also see a view patients who feel they improves a lot due to...
    Post by: Grigor, Dec 3, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Grigor
    Post

    Rapamycin Pilot Treatment Trial for ME/CFS

    We can only hope that this "trial" will give them more insights in the underlying pathophysiology. I admire them for trying although the setup...
    Post by: Grigor, Nov 11, 2023 in forum: ME/CFS research news
  12. Grigor
    Post

    Physical exertion worsens symptoms in patients with post-COVID condition : Post-exertional malaise in patients with post-COVID condition

    Yeah, I agree. I understand what they're saying. It might be true that the push crash cycle worsens the capacity but a reduction is always there....
    Post by: Grigor, Nov 10, 2023 in forum: Long Covid research
  13. Grigor
    Post

    Physical exertion worsens symptoms in patients with post-COVID condition : Post-exertional malaise in patients with post-COVID condition

    Thanks. Do criticize it. It will be good for a new project or paper. I personally was a bit on the fence about this sentence. It was not part of...
    Post by: Grigor, Nov 10, 2023 in forum: Long Covid research
  14. Grigor
    Post

    Physical exertion worsens symptoms in patients with post-COVID condition : Post-exertional malaise in patients with post-COVID condition

    This article was first published in Dutch for a journal of rehabilitation physicians. I was asked to correct the text. I didn't comment on the...
    Post by: Grigor, Nov 10, 2023 in forum: Long Covid research
  15. Grigor
    Thread

    Physical exertion worsens symptoms in patients with post-COVID condition : Post-exertional malaise in patients with post-COVID condition

    "Patients with post-COVID condition suffer from fatigue, limited exercise capacity, and post-exertional malaise. Post-exertional malaise is the...
    Thread by: Grigor, Nov 10, 2023, 6 replies, in forum: Long Covid research
  16. Grigor
    Post

    Any examples of flawed Dutch studies similar to the Pace Trial?

    I already see 2 papers published here. One about the Qure study and one CORPUS. There's also FITNET that even the PACE-trial authors themselves...
    Post by: Grigor, Nov 5, 2023 in forum: ME/CFS research
  17. Grigor
    Post

    Treatment and outcomes of 95 post-Covid patients with an antidepressant and neurobiological explanations, 2023, Rus et al

    In this interview Carla Rus claims that's only about 10% had no effect. Yikes....
    Post by: Grigor, Nov 2, 2023 in forum: Long Covid research
  18. Grigor
    Post

    Treatment and outcomes of 95 post-Covid patients with an antidepressant and neurobiological explanations, 2023, Rus et al

    It has now officially been published. https://www.nature.com/articles/s41598-023-45072-9#
    Post by: Grigor, Nov 2, 2023 in forum: Long Covid research
  19. Grigor
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    While I'm not excited about these drugs perse. My response wasn't great; mestinon some improvements but minor and LDN side effects galore and...
    Post by: Grigor, Nov 1, 2023 in forum: ME/CFS research news
  20. Grigor
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    After my complaints Cort now added this to the blog. Still making it sound a lot better than what it is, but a slight improvement I guess......
    Post by: Grigor, Oct 29, 2023 in forum: ME/CFS research news
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