Interesting that photography and meeting with DT etc took place in the US. That would rule out basically all small uk news organisations at least.
Glad we’re keeping hopeful ;) Hopefully you’re not correct.
Because it was cheap and no one in medicine bothered to challenge it.
This guy reported high heart rate on standing, weakness, coordination issues: https://www.vice.com/en_uk/article/jma83d/nasa-patient-8179-200...
A journalist is looking for a case study of parents of a child with ME who have had social services become involved inappropriately. [MEDIA] I...
Not sure how many agree with this point of view in this thread but this does worry me a fair bit. We’ve seen in the past that the message being...
My MP said she had pre-existing commitments but would arrange a home visit with me to discuss ME and the issues around it.
Interesting. I had similar. Prolonged stress in my life including a lot of very traumatic stuff, then finally took a holiday and came down with a...
Agree on all the points and also agree about the wider point of a change of focus / a clearer focus. It feels like if charities merged there’d be...
I mean people with Alztheimer’s or late stage cancer don’t tend to do sponsored walks raising money for those charities, it’s their caregivers or...
Reading those quotes is actually quite concerning. Brilliant scientist or not I’m not actually sure if I’m ok with supporting an organisation that...
We really need accurate numbers. It informs everything from advocacy to where research money can be directed. I don’t like the idea that people...
They pretty much already do this. This is basically what anyone who’s actually visited a CBT/GET clinic within the last few years gets told...
I agree with this. I think it’s better to more mindful of tone than content. It’s worth remembering that the person suddenly getting a bunch of...
I listened to an audio extract of this on audible and decided not to buy it. Not because of anything untoward, just didn’t seem my cup of tea. Is...
129 participants, self-reported outcomes. Feels like the S4ME membership could do something equal or even better, with better questions and a...
Ah - thanks, might have to try tor or a vpn maybe
Hmm-looks interesting but for some reason the sci hub link doesn’t open for me. They rarely do. Anyone know why that might be, or am I missing...
Quite weird to link Otaku culture with ME, in my opinion. Japan has definitely seen a rise in people becoming very insular and living lives...
Merged thread https://www.statnews.com/2018/10/16/polio-like-paralysis-cases-increase/
Separate names with a comma.
