Welcome to the forum @WAMES enquiries I hope someone here might be able to help point you towards some useful material on “dysregulation” to...
Why wouldn’t they have tested a separate group of people with moderate/severe fatigue
Most people with any severity of ME will get PEM from preparation to travel and the actual travel. But if you then have to be in a busy...
Orthostatic intolerance isn’t dependent on having low blood pressure. I have hypertension. I don’t know if my bp is increased or decreased when...
Is it beyond the realms of possibility for a Dr or small team from St Marks to travel the 100 miles instead of Karen. that may be outside normal...
I feel there’s some link to sleep timing as well, I find my mental and physical capacity probably at best 11pm onwards. I can manage ok in...
So sorry for them
Thanks for sharing this All I can say is I’m sending a big hug to you and to Chris
Using wearables since 2021 :whistle: Not rocket science……..
I was looking on my online medical records the other day for something else spotted that my record had been updated to reflect my flu/c19 jabs. I...
Yes.
That insinuation I believe was actually operationalised in the PACE manual that dictated practice in the CFS/ME clinics. even in 2016,when...
If it looks like a duck :whistle:
Hence the description as “update”
That reasonable adjustment form is very interesting @Haveyoutriedyoga
It will be ten months since the last “update” in the next couple of days……………………………
I don’t really bother taking my temperature as even when I feel feverish if I do take it it isn’t above normal
That appears to be what LC Advocacy’s letter is aimed at doing.
It just seems so antiquated to do this through massive overwhelming documents surely there are people with the skills to use an online...
They were asking specifically about maternity and gynaecology services although you have to scroll down past all the photos and ads to see that.
Separate names with a comma.
