Certainly I would like to think some of the peers are getting past professional politeness and asking direct questions to such as Chew Graham how...
But that list was from 20 years ago so he may no longer be active - his name wasn’t associated with the last APPG.
Thanks, for me that makes a difference, it’s not my personal experience but the most important thing people need to know about ME/CFS is that like...
Are you thinking of doing awareness advocacy @Hoopoe
They probably don’t even realise the irony.
Thanks for posting that one @Hutan Some of the medications people with ME/CFS get prescribed for pain/sleep have weight gain as a side effect,...
I guess it is positive if people in health professions with a psyscosocial perspective or a history of one are signing up to this. A bit like...
“Functional research is moderately interconnected to internalised beliefs of the author’s supervisors” :whistle:
But it is good to see as many of us expected that the use of trackers is becoming increasingly common and this appears to be over a long timeframe
Yeah I noticed on Monday when PEM started I could hear tinnitus in the afternoon whereas normally only registers at night
I’m bringing up using a rollator to start with and I’m thinking of getting one soon. I’m taking the scooter more seriously because one of my...
Really helpful info thanks @Kitty
I don’t currently use anything other than a stick although I’m giving serious consideration to a rollator and possibly a scooter of some kind. I...
Can I ask is there anyone here with moderate ME who can get out of the house driving themselves occasionally who has had PIP claim accepted....
Really interesting @Karen Kirke i get croaky voice too and definitely find myself tensing muscles when pain is worse so I will put your links on...
Were these participants self reporting as having a psychosomatic condition? Were they aware or unaware of the researchers definition of Medically...
Layla Moran was chair of the LC APPG I believe
Great job @ME/CFS Skeptic thanks for spotlighting this issue
Good to see ME Assn recognising these researchers pity they didn’t give them £90k to test FUNCAP on uk people with ME/cFS so it could be promoted...
Obviously for people who haven’t used Teams or similar then there would be a need for people who could give support, directing to tutorials or...
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