The physiotherapist at my LC clinic suggested I try this technique. I found it really difficult and unpleasant: almost immediately I would feel...
Cerebra and the University of Leeds are collaborating on research that seeks to better understand the extent to which parents of disabled children...
Interesting stuff. Looking at tags, there seem to be a few papers that have found the same sort of thing, but it doesn't come up much in general...
If he really wants people to 'put aside polarising narratives' and engage in productive conversations, I'd suggest that a positive first step...
is it though?
Ah thank you, that's not a thread I normally look at!
https://mastodon.social/@_slotek_/112847835155852556
To save anyone time if you were thinking of going to read the paper: it's just as weak and dishonestly slanted as you might be imagining.
Seen on social media, not an ME case but relevant to eating difficulties being treated as a mental problem not physical:...
It's interesting to see journalists being unafraid to present the psychological view of ME as a causal factor in the failings of care. I wonder...
There's a group called Not Fine in School for parents of children experiencing exclusion from education for a range of reasons, including health...
Postscript: sometimes the amazing improvements reported in case studies of toddlers turn out to be mainly that they got a couple of years older...
My perspective on this is that I'm autistic and I have an autistic child who would fit the 'severe' categorisation (at a specialist school, may...
PIP consultation closes at the end of today. It's a stupidly long form that you can't save - but there's no requirement to answer all the...
I found it hard to navigate - it's cluttered and visually overwhelming with a lot of irrelevant pictures and repetitions. Might be more useful for...
So either that's an unusual cohort at the outset or their definition of LC is meaninglessly broad.
I'll speak up for my local LC clinic, which hasn't tried any GET/CBT nonsense on me at all. But yes, 'get the help they need' is the wishfullest...
Thanks for transcribing all this, Dakota15. Fascinating and frustrating.
They're working on the assumption that there's a 'virtuous circle' in which brain fog goes away as long as you just work harder on your 'skills',...
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