I was a tween (11), my mum was an adult, our pem was exactly the same. The only thing to be careful with children is that they very quickly don't...
I don't just get brain fog, I get actual brain pain. When thinking hurts even buying a toaster is traumatic.
Certainly in Scotland there are no hospital based physician's for M.E. as far as I know. Wasn't it the nice guidelines that said a gp should...
Do you notice most of the things listed are patient blaming. I don't think NHS Oxford should help these patients, they've obviously brought it on...
I'm hoping that that the long list of all the drugs you're not allowed to have has been removed from the new guidelines along with recommendation...
Commenting on my own comment: I hope there's some decent guidelines on structures for diagnosis, there's too much refusal to diagnose and mis...
Is there any mention of having consultant based care? I have a gastroenterologist for my gastroparesis. A neurologist for my spinal fluid leak, I...
The only other issue to watch out for is the BPS lots efforts to rename ME and Chronic Fatigue Syndrome as MUS or FND. Once that happens the...
I was told I would get better by my teacher who also got m.e. (one year before me) when I bumped into her 5 years later. She meant well but I was...
Social interactions is still the very worst thing I can do, if I want to ruin my mental capabilites I only need to have 45min cuppa with a friend....
Pacing is not about a fitness goal! Pacing by it's nature is about maintaining a equilibrim, at whatever level that might be. Seen this incorrect...
I think an m.e. patient should have every bleeding aid they can think of! They are ignoring how difficult it is for a formerly fit person to use...
Per usual a government apologist that doesn't link suffering to realities of: long hours, poor pay, lowering of professional authority/esteem; and...
Don't think it's so simple, covid kills adults but long covid seems to be targeting healthy young folk. Certainly m.e. went for a lot of kids and...
Are the questions: Did Crawley's research influence policy? Did clinician's use her research in a clinical setting? Did it spawn research from...
I don't think this is entirely true she may have been ignored by some clinicians but she's had a big impact in the world of pediatrics. Before her...
My mum effectively hid me and my brothers. She didn't go looking for help. As she was ill (as well as us three) she knew there was a high risk of...
Very M.E. in that you make a couple of mistakes at the beginning and you don't get away with it. It's too late and you regret it for a long time....
When it's a few medics they get disowned by their peers as traitors. Never cross the doctor patient divide.:whistle:
https://www.nursingtimes.net/news/research-and-innovation/government-backed-study-will-unpick-mental-health-impact-of-covid-19-on-nurses-10-10-2020...
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