There's another issue here too. If we were all deconditioned we be at a certain level of ability all the time. I know for a fact that I'm not...
I heard that chronic fatigue syndrome was originally sold as purely a term for research purposes and that it wasn't going to be used as a...
DR Hillary has always been terrible with anything M.E. And I don't rate him as a doctor generally.
What an amazing guy Ed Yong is. Showing a great depth of thinking
I can add my ten cents. Firstly there is the nurse in Scotland who seems to be very popular. He seems to offer people a great deal of support as...
Until recently Sharpe was based in Edinburgh. I also know the Wessely visited Dundee's Ninewells hospital 1 or two years ago, won't have helped,...
The Scottish medical officer declared that we were covered by the english NICE guidelines, but I have a sneaky feeling the BPS lot are making the...
There's going to be another issue and that is that even if covid people want a diagnosis of me/cfs, they may not be able to get one. Last month my...
Also the possiblity that the virus was picked up years ago, living in their bodies then reactivated by a life event such as pregnancy, car crash,...
If you know anything about the stigma and way M.E.people are treated you're probably are going to resist becoming 'one of us'. It's a bitter pill...
There was a programme on British TV last night Surviving the Virus: My Brother & Me https://www.bbc.co.uk/programmes/m000ljnb One of the van...
Merged thread Inside health radio 4- long covid inside health on radio 4 with dr Mark porter on now 9.00pm uk. Talking about long covid and...
And longer, that's why there was the word 'invalid'. The victorian's knew all about sickly failing to thrive, bedbound, attic dwelling sorts
The words 'brilliant team" and "experts" stand out. :whistle:
I thought this might be of interest. It's a pretty outrageous tale of a woman who had a lumber puncture. Had all the symptoms of having had a...
The experience I had with doctors when i had severe m.e as a child (which was awful), completely destroyed my confidence. It's taken me years to...
I've also contacted my MP. The automated response is that his office is really busy at the moment because of covid so it's taking longer than...
Me and my mum both have slow wound healing, from the M.E. as far as i know. Particularly if i get any cuts on my lower legs and feet. I also had...
I found a very good csf leaks association website based in the UK. They list one of the signs of a csf leak as the brain slumping into the spinal...
Hi all, just want to update you on my situation. Talked to the neurologist at ninewells, dundee, yesterday, a lovely lady who started the...
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