I think the whole psychotherapy BS started as giving difficult patients someone to talk to (not necessarily in a useful or productive manner) so...
That's good, but if we don't make replication happen, it will be ignored and forgotten like every other small ME study to date. No neurologist...
I have to say I'm not very surprised by these developments. Very few doctors want to discuss ME in good faith or believe the illness could make...
Ah yes, the usual "this symptom is not a big deal and it's treatable anyway because i say so". No evidence required. Meanwhile lives keep getting...
The discrepancy that J.E. points out, that ME patient seem to be treated worse than patients with clear cut mental illness (in this case Anorexia...
Maybe it's just me, but I feel like OMF has lost a lot of momentum compared to the earlier years (despite having more money than ever). It feels...
As my illness slowly worsens over the years, i have gotten more and more food intolerances. At this point, i cannot eat most foods. I also often...
I think this is the reason. The main purpose of psychiatry/psychology is for crazy people (= people with complex illnesses) to have someone to...
I have seen you mentioning this often - if all genetic studies (including decodeME) turn out completely negative, what kinds of pathology would...
I've always thought this too. I remember reading a study about the possible connection between the persistence of toxoplasma gondii in the brain...
A lot of people have been saying this, for decades, but no study has ever been done where they try, let's say an immune drug, an antiviral drug...
IMO the fact that the NIH is not doing GWAS for long covid shows they are not taking it seriously. It is such an obvious thing to do and the money...
"I asked Nath how the early end of the ME/CFS study had affected it? Nath replied that the sample size was smaller than what he would have wanted...
@Subtropical Island beautifully written indeed. Thank you for your contribution. True, but i don't blame them. It should be medical professionals...
I am severe/housebound, the reason i described it as a mild inconvenience is that with the right kind of accomodations a fulfilling life is still...
Thank you all for your anecdotes. It might be that cognitively impaired patients have little voice as the cognitively intact ones run the show. It...
I tried artemisinin (which is pretty similar to artesunate) and it didn't do anything for my HHV7. Then again, acyclovir didn't work either.
I know that it has been mentioned a handful of times, but if it was so disabling the patients would be making a lot more noise. Like, it would be...
Every time the disability of ME/CFS is portrayed as people who were once physically active in life (often athletes) who can no longer reach the...
Once we have figured out who we would like to have research the illness, how do we get them on board? I don't think waiting for them to read this...
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