That's true, but it seems unique to certain pathogens and those patients have other signs of pathology. If you are suspected of having Lyme...
The problem with this kind of hypothesis is that ME actually makes you a lot more disabled than illnesses where we see the infection winning. So...
I have evidence of HHV7 in the blood but not in the CSF, interestingly. But there are no drugs that can effectively eliminate these viruses. So i...
I think this is the best chance we have at fast tracking the disease. Medical researchers spend their entire lives studying a single hypothesis...
I think that's definitely a possibility, some kind of immune activation in the brain would make sense. It can influence the periphery enough to...
I asked gpt-3 how to figure out the cause of an illness with fatigue, cognitive impairment and unrefreshing sleep (i forgot PEM, whoops). Here's...
It is dangerous to paint functional medicine doctors as the heroes of medicine. They are usually quacks that run a large number of nonsensical...
@Jonathan Edwards Thoughts on the innate immune system being stuck "on" in ME? Does the current evidence allow this or would we see abnormalities...
I might be wrong but i think reddit tends to attract certain kinds of people. If you look at r/science there's a large amount of very low quality...
Well, yes, people only care about power. It is very obvious. Usually a patient is powerless in front of a doctor, and this is especially true with...
Sorry if i didn't explain myself properly - i meant to ask why nobody is doing what NIH is doing right now with the ME/CFS intramural study. The...
Thank you for sharing and for your thoughtful contribution. I wasn't specifically referring to NIH, but to medicine in general. You say NIH...
It's especially bizarre considering all the talk about "personalized" and "precision" medicine. It makes me wonder if a large portion of medicine...
In the last tweet Brian Vastag says this: "One more thought: This study was ambitious & very large in terms of data generated. I don't think...
That's the thing, doctors don't change their opinion based on what the public thinks, they call the shots and don't listen to anyone except...
I've said it time and time again, the attitudes people have towards this illness is caused by doctors. Society simply listens to the...
Exactly. If ME scientists and clinicians don't start doing actual science we do not have much hope of getting a treatment any time soon....
Isn't Patterson the guy who claims to have cured something like 6000 patients yet not a single anecdote was to be found anywhere? Surely...
I think the core issue comes back to the fact that people listen to what the professionals (doctors) have to say and form their opinion based on...
What a joke. Would she dare express these kind of views on an illness like cancer? Of course not. She would be figuratively nuked off the face of...
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