It's not just ME/CFS. The Hamilton scale for example is widely used for depression and it's utterly disgusting. You can very easily have any...
Steroids and IVIG? Meh. So many people with ME tried those (me included) with no benefit. I guess maybe you could make the argument that perhaps...
The only patient tailored intervention is whatever strategy the doctor is gonna use to gaslight you this time
The problem with this is that Ron Davis has been touting for the last 6 years that they want to fast track research and find, and i quote from...
For a variety of reasons (mainly stigma) researchers with talent do not want to go anywhere near ME/CFS. Throwing money at the problem won't do...
Regardless of how it may help certain individual patients to think help is never coming, i don't think such articles have any right to exist, as...
Highly disagree. You don't make history by being submissive and saying thank you to the people who have been screwing you over for decades. NIH...
If this is the big breakthrough, why only 12 patients? Why not confirm it on all the patients enrolled?
Sorry, wrong wording - I meant to say that nobody outside of the small ME field would look at this and think it's worth trying to replicate....
Dr. Kaufman is considered the Mecca for many ME/CFS patients, he has a certain reputation. A few years ago Ron Davis said that every time he...
I have a chronic HHV7 infection detectable in the blood. I have measured it with real time PCR 8 times over the span of two years (in different...
I have this too sometimes. I don't have any evidence but my feeling tells me it might be related to hypometabolism.
The hypothesis was always credible. We have known for a very long time that pathogens can persist inside the body and there are probably hundreds...
The problem is that if doctors and researchers think ME/LC is a fake illness (which is the case for at least 90% of doctors) they're just gonna...
The whole point of the treatment is the deceit and the patient is not to be taken seriously. I've seen doctors with published papers where they...
There is this old blog post in which it was shown that a change in the dielectric properties of the cells in the sample might explain the increase...
I think getting a science communicator wouldn't achieve much of anything. The problem is that Ron Davis simply cannot get anything done. Every...
Agreed. It is absolutely ridiculous. They have been talking the last 5 years about making a more efficient nanoneedle instrument and every time...
I used to be a big believer in 2017 in what Ron Davis was doing. It seemed like he had the proper credentials and equipment to do proper science...
Doctors say a lot of BS. It would be nice if a proper trial was made to see if treating these infections slows down disease progression or not....
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