Does anyone know if anyone tried targeting those pathogens and if it affected disease progression?
Well, it's true. Still no treatment at all and no phase 3 trials ongoing or even planned in future years. Better than the people who have been...
i can be ok with them not acknowledging how severe the illness can be but this whole "your doctor can help" thing seriously has to stop. NOTHING...
He is probably referring to the UK Biobank data - it was analyzed and the IDO2 mutations are not more frequent in ME/CFS patients than they are in...
All these sort of prejudices come simply from the fact that doctors think patients with MUS do not really have an illness. Therefore, the way the...
[MEDIA] Here is a video of Angela Vincent talking about IVIG's immunosuppressive activity in the context of antibody mediated CNS disease. She...
It has been a while but back when i was looking at autoimmune encephalitis studies IVIG was always referred to as first line immunotherapy. Given...
To be fair though, high dose IVIG (2g/kg) is very effective in autoimmune illnesses of the CNS that are mediated by autoantibodies like autoimmune...
I mean, this seems huge, compared to what we're used to seeing in ME/CFS research. 20 clinics just in Germany cooperating together administering...
Sorry i don't remember which study it was, maybe someone else does. I mean, we will know soon enough what's inside. I don't see how they can...
Feels like i'm playing the devil's advocate but there is at least something interesting about this. If i recall there was a study showing that...
Then what is the discriminating factor? I've seen people with dementias in the early stage that don't have measurable deficits in...
It's funny how the neurologists get the cognitive stuff completely backwards. My experience is that i'm very aware of how my brain is not working,...
There is one thing i really don't understand about OMF. They seem really convinced about the metabolic trap hypothesis, and seem to have spare...
Yeah the classic "lets use 40+ year old technologies and tests with laughable sensitivity, if nothing comes up well it's just the fatigue" as if...
"functional" is kept intentionally ambiguous for political reasons. The meaning can range from "it's definitely psychological and there's nothing...
I remember he said a couple years ago severe patients have increased hydroxyproline and that it was a sign of collagen degradation. I measured it...
You know, if they applied all sorts of advanced technologies to analyze the brain of these "psychosomatic syndromes" i bet they would come out...
I've always been very surprised at how little neurologists understand the neurological symptoms of ME. I'm not talking about the fatigue, or the...
I have not but travel restrictions should not be as bad now. As far as i know ampligen still isn't available anywhere (except the US but it's very...
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