That's not how it works. I was administered those tests many times and they are not capable of seeing my problem. They are like doing a standard...
I will add a second thought: I tried studying my own problem out of desperation and I came to the belief that it was related to the anterior...
I will add this thought: I don't think that psychiatrists are to blame for my problems. They will not deal with my illness simply because it's...
So, I tried to organize something - won't go into detail but you can assume it's documents. The effort I put into this, gargantuan and I feel like...
Really bizarre claim, ME patients often have no mood because it requires too much energy to be moody. Even among doctors who think ME is...
ME research in a nutshell. Let's go guys, we will totally be taken seriously like this. I can't think of a reason why anybody would be skeptical.
Nice, at 82 years of age his career is just getting started so I'm sure he will have plenty of avenues to start studying ME, and he will totally...
Even this happens, it doesn't matter. Once the patients are actually diagnosed, we can leverage on huge numbers and make stuff happen with...
I am "sure" of the clinical diagnosis when a team of ME/CFS experts screening for a study is involved, but those are very hard to come by so for...
It probably would, given that only a few ME patients recover? So if you were positive for the test, chances are it would keep being positive and...
In the UK and US there is a good number of doctors who, I suppose, are at least somewhat decent at diagnosing ME/CFS, after we exclude the BPS...
It's a FND patient who got gaslit by grifter neuropsychologists and doesn't get the memo that outside those small circles nobody takes FND...
Yeah other things have been ruled out. Man it's such a joke that any ME related problem never has a treatment or a solution...
I'm pretty sure his tinnitus comes from the brain not the ear. He doesn't have any hearing problems.
A friend of mine with severe ME has a very severe case of tinnitus, which gets worse with exertion (even minor mental exertion). He says it feels...
The clinical model is a lot of wishful thinking and lack of attention to detail from doctors. If patients can't get solutions from seeing a bunch...
I feel a bit ashamed that my country is right next to Germany and our government is putting exactly 0$ towards ME research. Our associations are...
Publishing studies to get their salary instead of clearly laying out the truth, that's what's going on. The incentive structure in medical...
Not surprising if it wasn't replicated, but we also shouldn't rely on a single team who might diagnose the wrong patients or mess something else up
I'm not sure why our organizations haven't mobilitated to set up a large CPET study. I get it that it's invasive but if it's potentially the start...
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