Many years ago, when I could still leave the house, I tried going for a swim at the beach. I like going underwater and somewhat far from the...
Wasn't polybio all about replicating those tissue viral studies? They got a ton of money too. What happened to that?
To be fair though, that's what everyone thinks. Everybody judges your life. That's why nobody wants to research this illness and when they do they...
https://old.reddit.com/r/doctorsUK/comments/15mpc2o/nhs_told_to_stop_blaming_me_patients_for_being/ More insights from the brilliant minds of...
There's a reason MS isn't called occasional mobility issues syndrome, and schizophrenia isn't called chronic delusion syndrome. Or autism chronic...
Not as far as I'm aware (another missed opportunity).
I really hope I'm wrong but this is looking like the half assed studies that have gotten us nowhere in the past 40 years. This is why it was so...
How can this be squared with the metabolic room showing no differences from controls?
Do JAK inhibitors have the potential to work better compared to steroids (methylprednisolone, prednisone, deflazacort etc) when it comes to...
That should have been up to our advocacy organizations, but unfortunately we were not lucky in this aspect either.
I find it really insulting that the NIH kept saying for years there is no funding for ME because the researchers requesting the grants have low...
This recover thing is straight up a scam. In a just world, there would be an investigation and people would end up in jail.
Or, maybe, the patients actually have objective cognitive impairment your tests are not capable of measuring, and being denied and mocked by...
The trials are really disappointing. The chance of anything working there is almost zero. They really don't have a clue.
It's like asking Tarzan to come out of the jungle and show confidence at a formal dinner with business executives. Or grabbing a business...
I have this problem as well. Psychologists have told me that I'm a ghost, I'm like someone that doesn't exist. It's pretty spot on, except that...
This is an important point. I wanted to write about it here for long but didn't because I lack the energy. Anyway, what we should have focused on...
I don't wanna diminish his writing or anything, but this is literally just what patients say. It's not hard to listen and repeat. It's just that...
It is worth noting that lack of pleasure can be associated with apathy in neurological illnesses (ME included) that have nothing to do with...
These drugs have already been tried by so many patients for decades. What reason is there for not going straight to a blinded trial? Are they...
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