I've interacted with dozens of neurologists over the years and i haven't met a single one who thought FND was a legitimate illness that required...
I find it interesting how researchers like Mr. Prusty and Mrs. Proal make so much noise about herpes viruses, but when I contacted them about my...
This is not surprising at all. A medical AI is trained on publication data so it will repeat the same lies doctors tell themselves. The proper...
I appreciate your optimism, but it's much easier said than done. I cannot think of a way to achieve this without requiring an unreachable amount...
This is an enormous problem, bigger than people realize. I have very big displeasure with all ME organizations for the reasons you showed but i...
I've tried mito supplements many times (carnitine variants, Q10 etc) and they make me distinctly worse. Fatigue and brain fog increased...
I've seen something like 50 doctors and was hospitalized (neurology, infectivology, rheumatology departments) a few times. Sometimes during...
This is very true, and it's because the incentives are misaligned. Researchers have every reason to drag things out forever and no reason to reach...
The idea behind the study is good, the problem is that most people at NIH act in completely bad faith when it comes to ME.
Posts moved from USA: The RECOVER Initiative How much do you wanna bet a couple years from now the NIH will be regretfully telling us how they...
Calling Crawley's papers "science" is a bit of a stretch isn't it? These purely political answers will only earn distrust from patients towards...
Have the ethical boards considered that maybe, just maybe, spewing out one unblinded study after another for decades, luring desperate patients...
Maybe I'm not understanding, but this is completely wrong. RCT is often the only way to know if a treatment works and if the trial is large enough...
I don't know about you, but I've tried about 50 drugs/supplements from trials like this one and none of them worked. Trials like these are...
The core issue here is the failure from doctors to adequately categorize patients. "Autism" is extremely heterogeneous, some of the people could...
Thanks everyone for your replies. I'll try some things and report back if they work. I don't have SIBO or anything "obvious" like that. MCAS maybe...
When i saw the #teamClots stuff on Twitter and the way they were marketing this whole thing, i would have bet money that it would turn out to be a...
As my illness gets worse with time, i become intolerant to more and more foods and it has gotten to the point where aside from non processed meat,...
We are right even though we have been proven wrong a thousand times before, but this time we must be right because there is no evidence that we...
I just had a funny (tragically funny) thought about Neuralink implants. I have just come from a minor surgical procedure that left me with a...
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