This really gets to me. Paternalism at its worst. Michael J. Fox says “Parkinson's patients are the experts on what we have. We have a...
This. I have spent the last few years doing everything I can to try and change... Any of this. ME, benefits, mental health... It has...
I did the HOPE for Long Covid course, on an app on my phone and they had a couple of weeks or so on figuring out what matters most to you, with...
why would it not be possible to download a .pdf? That is how I would expect this to work; it is widely used elsewhere. Why can't patients have a...
I feel absolutely bl**dy furious that in the middle of the Post Office scandal, the tainted blood scandal, the Tavistock clinic scandal, the carer...
I attended (virtually) the rehab course the LC clinic ran. It was two hours once a fortnight and we all said; why isn't it an hour a week? and...
OMG. "co-production between people with ME/CFS and specialist ME/CFS services. This is to ensure that the toolkit provides information that is...
That's a terrifying thought, claiming to help while using the tools they claim do so as a silencing technique.
Is there any way we can find out? Maybe contact the MS society & cancer research UK & show them this and ask "do you get asked this stuff?"...
Apologies. The Sussex group was slightly sarcastic shorthand, as that group is known to be very supportive of GET/CBT and the researchers involved...
Oh, WOW those comments! :jawdrop:
Is it the Sussex group?!
Did anyone else see this..? [MEDIA]
Interesting phrasing. My understanding was that it was a massive community wide effort?
...And this post is how I found out that I am blocked by Michael Sharpe. Who I have never interacted with. Excellent "support for 'freedom of...
Oops. I think I am repeating known info, but had a conversation about this elsewhere today.
I have had confirmation that yes, this is the case, and that as of April 2025 they will be taking over responsibility for our local Long Covid...
I think it is going to take a lot more than a letter. I am aware that there are various conversations going on about this, and I am being...
Sorry to be That Person but it is MELN = ME Local Network ME Local Network (MELN) is a national network of local support groups of people living...
:laugh: brilliant
Separate names with a comma.
