On a related note, the government's benefits green paper of two years ago used the words "trust" and "rebuilding trust" something like 17 times....
MS society response, which is saying what I have been saying about the government's rhetoric for a while: looking at the wrong things...
I listened to the episode of the Newsagents podcast https://www.globalplayer.com/podcasts/episodes/7Dri7Jv/ with Hannah Barnes, who wrote the...
https://www.disabilityrightsuk.org/news/disability-poverty-campaign-group-statement-modernising-support-independent-living-health-and Excellent...
I agree, but I can't stand by and do nothing, as the stress this causes is overwhelming, and at least I will have put my comments in writing for...
That's really helpful. Thanks @Kitty I am planning to write a response, but have a serious lack of capacity, and it feels totally pointless after...
The green paper and PIP consultation are out. Is it ok to post it here? DWP consultation: Modernising support for independent living: the health...
This. :mad:
This too. We are far better informed then the so called specialists. A little humility might be helpful here. As Michael J Fox said, along the...
This is the bit I really have a problem with. I do a LOT to learn about my issues, whatever they might be, and do the best I can to improve. I...
Hi @Aaron Love the idea of these billboards! I might be able to help you with a template email. Feel free to message me directly and we can...
I saw the thread title and came here to say the exact same thing. What is it with so called experts being unable to just say "we don't know" and...
This. I find it completely unfathomable. I also cannot understand the blatant and glaring contradiction between dismissing us when we say your...
Haven't they made this part if it though? They make us unreliable narrators to our own experiences and try to convince us that the fact we don't...
We've got one! https://thesciencebit.net/
In all honesty, I don't have a plan. Yet. At present it is just thinking, defining the problem, asking some questions and gathering information....
I would add to this: Tainted blood Vaginal mesh AIDS Hillsborough Post Office Tavistock Clinic? There is a culture of disbelief and patient /...
This post has been copied from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023...
A more serious version of my earlier post to join the dots I currently see: Culture of disbelief (Govt & healthcare): only see through the lens...
Oh. I see! Apologies, totally misunderstood the question(s). If i have understood correctly, we want to find out: • is there any kind of...
Separate names with a comma.
