FowardME is a discussion forum for various ME groups, as opposed to any kind of coalition with staff to take any action. While we would all...
This topic has been split from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023...
I was also starting to think that there are a number of strands that seem to be knitting together, so I am grateful for someone else saying it out...
This is really well summarised; they are attempting to rehab people with an ongoing, untreated illness. Where else would this happen? How is is...
This is utterly unforgivable and is the exact opposite of the hippocratic oath. The mental gymnastics that they must have to go through to get to...
I respectfully disagree. TW: I started to hyperventilate when I was turning blue and pretty much dying with pneumonia and double pleurisy 16...
at a cost of £90k How much is a fully funded PhD? or a clinical trial? or even a pilot study? or even collecting wearables data from volunteers?
I was reading this and thinking that it is actually a helpful idea, as someone who lives with PTSD and other MH issues from the multiple things...
So... All the things ME robs us of, her company can give us back through That is the most "jolly hockey sticks" way of describing CBT+GET I...
I have always had mild anxiety and it would on occasion upset my stomach - it had a very specific trigger for me so wasn't a major issue. Then I...
Excellent article. The additional issue we face is that sharing articles such as this or the excellent Long Covid Advocacy 3 part series:...
How are we supposed to push back on any of this?
Weirdly, I found since getting LC they I miss words and/or letters out when speaking, typing or hand writing. The above examples @It's M.E. Linda...
Much like if you do what you have always done you will get what you have always got. Which seems to be what they are aiming for... ?
This explains so much.. :rolleyes:
Very well put. except it feels like the people in these fields seem to want to make it so, which might be a large part of the problem. The wish...
Agreed. Surely all other possibilities should be ruled out....?? This is like going to a doctor having a sore leg and the doctor saying "exercise...
This. Exactly this. Thank you for voicing my thoughts on this so perfectly @Kitty
Seconded, really excellent work. "patient as the receiver of the clinician's wisdom. It assumes that clinician input makes a significant...
Apologies, I did not mean to suggest that you, specifically were; I am extremely concerned about the FND mission creep. This. The FND diagnosis...
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