Especially as they are not really giving them a voice, they are giving them a chance to talk to a student who then messes about with what they say...
This is a Masters of Mental Health Care student thesis. It saddens me that students on such courses are clearly not taught about interpreting...
There is also the question of spelling. According to google:
Do you mean your forum name, or the name of your blog, or both? I like the name ME/CFS Skeptic. It invites curiosity to read your blog and posts...
I think that depends on severity. I was able to shower and dress most days and work part time when my ME was mild. I dressed every day except when...
As I understand it, the plan was to do a separate review of exercise therapy based on individual patient data from the trials, obviously including...
The odd thing with that argument is that they have already dealt with a complaint, presumably from BPS people back in 2021 (edit: or maybe...
We've stopped using bird feeders, and now just buy RSPB half coconut shells filled with some sort of fat with seeds in. They hang up, and can be...
The Larun review is specifically a review of clinical trials of exercise therapy for CFS. It only looks at the subjective short term outcomes of 8...
Given that there are close to zero doctors specialising in ME/CFS, that effectively makes the Cochrane reviews of ME treatments likely to be...
I would think it would help if you are dust allergic. I found a robot vacuum cleaner helped keep the floor dust under control during the pandemic...
I have been trying to find a way to express the difference I see between minorities of the sort @Jonathan Edwards listed - deaf person, cancer...
I don't think the problem is advocacy gone wrong for ME/CFS. At least I don't think that's the major problem. think the characterisation of pwME...
If it has to be done manually that's not really surprising in the middle of the holiday season when many offices close for a week or 2.
It's understandable that she supports MS because her mother had it. What is not understandable and is in my view pretty unforgivable, is her clear...
As far as I can see this research is done with healthy people, so the fatigue they are talking about is the immediate healthy fatigue after a...
It's funny reading that and just substituting a couple of words: Pot. Kettle.
I think the pilot was supposed to be the particular way of doing patient engagement with an IAG advising the review writing group, and some public...
It's so blatant. They list the limitations - subjective, single time point - then go on and claim cause anyway.
I have just been reading through the brief descriptions of the 6 full trustees of the MEA: https://meassociation.org.uk/mea-team/ Of the six,...
Separate names with a comma.
