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  1. Fizzlou
    Post

    Portugal: 1st International Conference on Clinical and Scientific Advances in ME/CFS and Long COVID, 3rd & 4th April, 2024

    [MEDIA] Video less than 2 minutes
    Post by: Fizzlou, Apr 2, 2024 in forum: General ME/CFS news
  2. Fizzlou
    Post

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    ❤️ Brilliant
    Post by: Fizzlou, Mar 12, 2024 in forum: General ME/CFS news
  3. Fizzlou
    Post

    Who is Simon Wessely?

    https://simonwessely.com/ Sorry if I have missed someone else posting this. There is a statement page on entitled “CFS personal story”.
    Post by: Fizzlou, Mar 4, 2024 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Fizzlou
    Post

    Is there a constant anti-viral response?

    @Aspen this matches my experience. No classic cold symptoms such as cough, sore throat and runny nose. Although the ME flares up and I get a...
    Post by: Fizzlou, Mar 1, 2024 in forum: Immunological
  5. Fizzlou
    Post

    Austria: WE&ME Foundation (formerly TEMPI-Stiftung, TEMPI-Foundation)

    https://public-health.meduniwien.ac.at/unsere-abteilungen/abteilung-fuer-primary-care-medicine/ueber-uns-einblicke-in-highlights-der-abteilung/webi...
    Post by: Fizzlou, Feb 25, 2024 in forum: News from organisations
  6. Fizzlou
    Post

    Open UK: Investigating the presence of Micro Clots and other blood factors in people with ME/CFS, Sheffield, Caroline Dalton, Ryback, Hillier

    Read the comments on the NIH intramural study whilst giving blood for the Blood factors study at Sheffield. Met Caroline and Audrey and had a good...
    Post by: Fizzlou, Feb 21, 2024 in forum: Recruitment into current ME/CFS research studies
  7. Fizzlou
    Post

    Hyperbaric oxygen therapy improves neurocognitive functions & symptoms of post-COVID condition: randomized controlled trial, 2022, Zilberman-Itskovich

    Straight in at 2ATM? MS HBOT centres ease people in at 1.5ATM (equivalent to 16 feet depth) for 20 sessions minimum. Then you can choose to go to...
    Post by: Fizzlou, Feb 18, 2024 in forum: Long Covid research
  8. Fizzlou
    Post

    Rice cookers?

    I have a Yum Asia rice cooker. My son who now lives in Japan left it here so it was not by choice. I really like it. Easy to cook rice. Rinse...
    Post by: Fizzlou, Feb 17, 2024 in forum: Home adaptations, mobility and personal care
  9. Fizzlou
    Post

    The nanoneedle salt stress test – too good a clue to leave abandoned on the lab bench?

    https://news.uci.edu/2023/10/19/rahim-esfandyar-pour-wins-darpa-young-faculty-award/ Adding this as Whitney’s post about Rahim was concerning.
    Post by: Fizzlou, Feb 12, 2024 in forum: ME/CFS research news
  10. Fizzlou
    Post

    Preprint Unequal access to diagnosis of myalgic encephalomyelitis in England, 2024, Ponting and Samms

    https://www.meaction.net/2024/02/01/meaction-uk-and-scotland-update-prevalence-figures-based-on-new-data/ MEAction will now use 700000 as the...
    Post by: Fizzlou, Feb 2, 2024 in forum: ME/CFS research
  11. Fizzlou
    Post

    Do you have a UK NICE care plan?

    No. Asked ME clinic and GP. Both refused.
    Post by: Fizzlou, Jan 25, 2024 in forum: General ME/CFS discussion
  12. Fizzlou
    Post

    What ME/CFS research, funded by UK sources, is currently in process (as of end Dec 2023)?

    Patient-Led research $4.8M...
    Post by: Fizzlou, Dec 30, 2023 in forum: ME/CFS research news
  13. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    @Dakota15 yes - not sarcasm but phrased badly. Online attendance ranged 200-440 ish. (Full stop) However I was a little surprised at the...
    Post by: Fizzlou, Dec 14, 2023 in forum: General ME/CFS news
  14. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    The ligand used isn’t the most specific as it attaches to normally occurring substances even in healthy controls so produces a slightly noisy...
    Post by: Fizzlou, Dec 13, 2023 in forum: General ME/CFS news
  15. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    Lipkin described 3 projects he would like funding. Jessica Maya from Maureen Hansen’s group talked a tiny bit more on PD-1 blockade drugs and...
    Post by: Fizzlou, Dec 12, 2023 in forum: General ME/CFS news
  16. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    Added screenshot here separately regarding a potential GWAS.
    Post by: Fizzlou, Dec 12, 2023 in forum: General ME/CFS news
  17. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    Ian Lipkin made the briefest of comments regarding a potential project with 5000 ME patients and a collaboration with Chris Ponting. Slide up for...
    Post by: Fizzlou, Dec 12, 2023 in forum: General ME/CFS news
  18. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    Online attendance less than 400 and a nearly empty auditorium. Very strong lived experience testimony so far.
    Post by: Fizzlou, Dec 12, 2023 in forum: General ME/CFS news
  19. Fizzlou
    Post

    Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID Dec. 12-13, 2023

    Hardwired to router but video keeps cutting out and screen blurring. Is it me or them? edited: seems to have resolved in last few minutes
    Post by: Fizzlou, Dec 12, 2023 in forum: General ME/CFS news
  20. Fizzlou
    Post

    CDC Data Brief: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults: United States, 2021–2022, 2023, Vahratian, Unger et al

    Yes agree @LarsSG i don’t trust any statistics re prevalence of ME diagnosis. The term chronic fatigue has done a lot of damage both ways.
    Post by: Fizzlou, Dec 8, 2023 in forum: ME/CFS research
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