If as estimated (forgot where) 90% of pwME are undiagnosed then that would be 13% of population fit in the ME criteria. (Doubtful) Calculation:...
Just listened to David Tuller’s interview with Sarah. Also read Janet Dafoe’s tweeted feedback. Original Coroner replaced with new one some time...
This was an excellent presentation and an effective appeal to replicate in a US cohort. Really worth watching even if you have watched Chris...
There will be a second opportunity in Jan/Feb according to an email I received.
Microclots not the only focus From the patient participation form there are 3 aims, the first 2 relate to microclots. Aim 3 – We will...
https://www.astriid.org/news/astriid-statement-on-autumn-budget-2023/ Astriid consulting focus on long term health conditions in work Good...
Questions/comments after reading pp form Why is timeframe so restrictive (2 weeks starting 1 week from now)? How many pwME would they like...
https://www.mssociety.org.uk/get-involved/campaign-with-us/campaigns-blog/what-do-governments-welfare-plans-mean-people-ms I attach this from the...
MEAssociation looking for document feedback (FB)
@Ash I believe he is referring to Karen Gordon and the petition through Change set up by her Dad. Didn’t link petition as Nigel didn’t...
I enjoyed reading Cort’s article which helped me understand the machine learning approach and those diagrams a lot better.
Just watched Nigel Speight’s talk. He gives case examples and his first example is now featured in an online petition. He implored listeners to...
@EndME Last tweet from James Lab was recruiting pwME August 2022. Survey link in that tweet still works.
[MEDIA] Just posting his tweet from 22/10/23 which links up to the thread study. Also screenshot for ease.
Van Elzakker responded to a tweet that he has been recruiting pwME since before the pandemic for this same study design but no one volunteered! (I...
From TwitterX a timeline of what this team has been doing and people involved. Posting for info and still feel a little dubious but can’t place it.
https://clinicaltrials.gov/study/NCT05911906?cond=Long COVID&intr=Remdesivir&rank=2 Adding this link to LC trial on Remdesivir. At least 3 people...
Moved posts from this thread BBC Article https://www.bbc.co.uk/news/uk-england-derbyshire-67081243 Antiviral treatment for 100 LC patients (2+...
Are Cochrane shutting down next year? If so will their stance on GET remain in the public domain and continue to influence beyond their closure?
:emoji_open_mouth:
Separate names with a comma.
