Acronym PMS might be problematic :)
For Liverpool I have been told I can self refer back within 6 months or GP refer after but ONLY to ‘do’ the seminars. Therefore that’s the end of...
https://www.rlbuht.nhs.uk/departments/medical-specialisms/chronic-fatigue-syndrome-myalgic-encephalomyelitis-cfsme/frequently-asked-questions-cfsme...
Yes I am still waiting The Brain Charity in Liverpool to contact me. This isn’t about any therapy but I guess to divert pwME away from Liverpool...
I’m looking at the diagnostic algorithm (screenshot attached) and trying to work out their thinking. I’m not sure I understand the last two boxes...
Go to GP. Useful to have records of HR and BP (when better/worse) plus Video/photo. I had this and had low BP and HR during episodes. Had low...
https://chng.it/6KnQWKJfm9 Urgent scientific research into mechanisms/pathways causing Long Covid & Post-Viral ME/CFS
Agree. Then we have well intentioned efforts to move forward but rarely with the weight of numbers. Petitions too narrow. Too many UK ME...
“Since 2018 the Government has committed over £53m to research on ME and Long COVID. Robust research and scientific evidence is pivotal in...
https://petition.parliament.uk/petitions/605679 Government response added (copied below) “Since 2018 the Government has committed over £53m to...
[MEDIA] For information part 2
Liverpool OT referred me, The Brain Charity is based in Liverpool so she’s aware of it’s existence. Essentially Liverpool only want to deliver a 3...
Had my last phone appointment with Liverpool MECFS clinic. The situation for anyone in their large catchment: Liverpool only deals with...
[MEDIA] Dr John Campbell speaking about sequelae of LC particularly diabetes. Some interesting comments on post 1918 Spanish Flu and other...
https://www.telegraph.co.uk/health-fitness/body/long-covid-devastating-illness-whiplash-work-shy/ Title changed in text but not link. Haven’t...
1993 at Uni EBV and PVF (suspect MECFS started then but activity not too limited) 2005 Chickpox as teacher, went PT but managed 5y. 2011 unknown...
Too brain fogged to give detail. Re referred to Liverpool (CFS)/ME clinic. Main points: 1. Manager is an OT and seems understanding 2. Remit of...
https://onlinelibrary.wiley.com/doi/10.1002/rmv.2315 Title Proposed subtypes of post-COVID-19 syndrome (or long-COVID) and their respective...
[MEDIA] For information: Professor Pretorius webinar on hypercoagulation and apheresis. The main part that discusses Apheresis is from about...
I was very fortunate that after a few rough days I gained a temporary improvement. I estimate about 25 points on the MEA scale. Only from my first...
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