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  1. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    @SNT Gatchaman Thank you I have found your thoughts helpful. This thread was here to follow up the microclot and vascular issues being seen in...
    Post by: Fizzlou, Nov 14, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  2. Fizzlou
    Post

    Aphaeresis/ Apheresis (for removal of microclots)

    @Jonathan Edwards The evidence I see is personal patient reports of recovery or improvement. Some well known MECFS researchers like Prof...
    Post by: Fizzlou, Nov 12, 2021 in forum: Other treatments
  3. Fizzlou
    Post

    Aphaeresis/ Apheresis (for removal of microclots)

    Private treatment costs money regardless, can understand why Long Haulers are queuing up and prepared to pay. Exploitation? Opportunism for...
    Post by: Fizzlou, Nov 12, 2021 in forum: Other treatments
  4. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://portlandpress.com/bioscirep/article/41/8/BSR20210611/229418/SARS-CoV-2-spike-protein-S1-induces-fibrin-ogen...
    Post by: Fizzlou, Nov 11, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  5. Fizzlou
    Post

    Aphaeresis/ Apheresis (for removal of microclots)

    Any thoughts on the list of collaborators? In @strategist link in above post.
    Post by: Fizzlou, Nov 10, 2021 in forum: Other treatments
  6. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    The problem I have with MECFS is that nothing gets done because there’s supposedly not enough evidence to warrant it. The new guideline...
    Post by: Fizzlou, Nov 9, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  7. Fizzlou
    Thread

    ME/CFS, FM: Mitochondrial dysfunction ... cellular hypoxia, hypoperfusion, endothelial dysfunction, persistent clots, 2021, Chang, Figueredo

    Posts copied from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS...
    Thread by: Fizzlou, Nov 8, 2021, 8 replies, in forum: ME/CFS research
  8. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://www.researchgate.net/publication/355982446_MECFS_FM_MITOCHONDRIAL_DYSFUNCTION_IN_DISEASES_PRESENTING_CHRONIC_FATIGUE_AND_BRAIN_FOG_IS_ASSOC...
    Post by: Fizzlou, Nov 8, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  9. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://www.omfcanada.ngo/study-of-thrombospondin-1/ Just adding for information. A cluster of pwME have elevated TSP 1, another reduced and...
    Post by: Fizzlou, Nov 8, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  10. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://www.tlcsessions.net/episodes/episode-18-professor-resia-pretorius-microclots Podcast from The Long COVID Sessions Episode 18 with...
    Post by: Fizzlou, Nov 6, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  11. Fizzlou
    Post

    Aphaeresis/ Apheresis (for removal of microclots)

    In the video intro it is highlighted how heterogeneous LC is. The same issues we see with MECFS where there are ‘layers’ or comorbidities that...
    Post by: Fizzlou, Nov 5, 2021 in forum: Other treatments
  12. Fizzlou
    Post

    Aphaeresis/ Apheresis (for removal of microclots)

    The video and the FB group say that Professor Pretorius is going to Germany this month and testing new patients before, during and after. Dr Khan...
    Post by: Fizzlou, Nov 4, 2021 in forum: Other treatments
  13. Fizzlou
    Post

    Aphaeresis/ Apheresis (for removal of microclots)

    Copied post [MEDIA] Update from Dr Asad Khan (AK) who is a respiratory consultant in Manchester and he fits the MECFS criteria. He is in Germany...
    Post by: Fizzlou, Nov 4, 2021 in forum: Other treatments
  14. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    [MEDIA] Update from Dr Asad Khan (AK) who is a respiratory consultant in Manchester and he fits the MECFS criteria. He is in Germany undergoing...
    Post by: Fizzlou, Nov 4, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  15. Fizzlou
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://clinmedjournals.org/articles/jmdt/journal-of-musculoskeletal-disorders-and-treatment-jmdt-7-090.pdf @Arnie Pye Heparin: a few blogs out...
    Post by: Fizzlou, Nov 4, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  16. Fizzlou
    Thread

    Aphaeresis/ Apheresis (for removal of microclots)

    Thread split from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS *****************...
    Thread by: Fizzlou, Nov 3, 2021, 153 replies, in forum: Other treatments
  17. Fizzlou
    Post

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    [MEDIA] Dr CS from MEA states (above) that the mitochondrial function for AXA1125 will be tested with MRS and he was tested nearly 40 years ago...
    Post by: Fizzlou, Nov 1, 2021 in forum: Long Covid news
  18. Fizzlou
    Post

    Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

    @Perrier MEAssociation post https://www.facebook.com/171411469583186/posts/4502171409840482/?d=n HELP Patient initiative...
    Post by: Fizzlou, Oct 30, 2021 in forum: Long Covid research
  19. Fizzlou
    Post

    Nurses for ME

    Did anything happen with Nurses For ME? Generally a good article in nursing times including quotes by Caroline Kingdon....
    Post by: Fizzlou, Oct 30, 2021 in forum: News from organisations
  20. Fizzlou
    Post

    Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

    A Facebook group exists -Patient initiative Apheresis for long covid This group seems to be run by a successfully treated Long Hauler and has the...
    Post by: Fizzlou, Oct 28, 2021 in forum: Long Covid research
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