Norwegian survey from 2020...
In Norway we have don several large patient surveys. A survey about course of illness in 5822 respondents from all of Norway. We asked about the...
We closed the survey today for all languages. We received 12.197 responses in total. Some of those will be incomplete, but we are still well...
Quick update: The survey is now available in Hungarian. We have reached 10878 responses. The survey will be open until August 15th.
We will be happy to provide the numbers for each country to the people in that country :)
That is one possibility. Another is that there is more focus on ME than other places, and perhaps easier to be diagnosed, so there are more...
We have now passed 9500 responses. A big increase in Germany, and quite a few responses from outside Europe as well.
Here is a link to the figure, I hope you can open it. https://photos.app.goo.gl/Lc31obw21Ear4ewS8
Update: We now have more than 8500 responses, the figure below shows the distribution over languages as of Friday. Big thanks to Open Medicine...
We have - tentatively - set the closing date to July 31st. We may keep it open longer in order to get more answers from some countries. We only...
We really need help reaching UK respondents, so any help in sharing information about the survey is greatly appreciated.
Yes, it will be published as one report, but we will certainly look to compare data from different countries. I will, for instance, be very...
A quick update: We now have 6573 responses. Norway is in the lead with over 2000 responses, but we have nearly 1000 responses in Swedish, over 700...
We asked the ME patient organisations in the participating countries to provide translations, assuming they had the expertise to do so. We will...
We have now received 4974 responses to the survey. Thanks to everyone who uses their energy on answering! The number of responses from the...
I do understand your frustration here - and I wish we had a way of making this more detailed. In this case, answer what is true for the entire...
Thanks for good comments. Yes, it is a trade-off between length of survey and being precise. In the Norwegian survey in 2019 we included comment...
Yes. It is difficult to know which term is used ib every country in Europe, and there are also a lot of feelings concerning which term to use :(...
We have had 1974 responses to this survey so far, with Norway leading the way with more than 600 responses. We are deeply grateful for any help in...
I worked with arild Angelsen on the Norwegian survey, we are behind this as well. We have previously done surveys about the severely ill, young...
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