The CCC allows for post exertion fatigue in place of PEM so it could include non ME patients. https://me-pedia.org/wiki/Canadian_Consensus_Criteria
But then doctors will say it's not IgE so it's not a real allergy which leaves patients without a diagnosis. I'm not saying that I know that MCAS...
What diagnosis do you propose we give to these patients who are presenting with idiopathic allergies?
It was toward the forum in general not just you. Shepherd is soft upon BPS propaganda and Russell Fleming doesn't seem to understand why having a...
@Firestormer (Russell Fleming) was upon record as saying it doesn't matter if there's no test for ME because there's no treatment. The treatment...
I tried to warn you: https://www.s4me.info/threads/poll-have-you-ever-believed-in-psychosomatic-illness.34205/page-3#post-484876
Which one and why?
Not happy with that, I'm a permanent deteriorater, I've been 100% bed bound and unable to talk for many years.
SEID is a better name than CFS, however those of us who are harmed by exercise should get the label Deteriorative Exertion Intolerance Disease.
https://www.bbc.com/news/health-69040592.amp Discussed on this thread: BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower,...
Trish it says long term but not permanent. I've never seen a published paper say permanent. The closest I've seen is this:...
[MEDIA] - Bateman says Long Covid can cause immediate PEM, breathlessness etc. I think this is diluting the definition of ME, or at least PEM-ME...
In my opinion, it's all part of the gaslighting, we all know what they really mean by real, and it's anything but real when it comes to...
@31:00 She starts talking about sacrificing other areas of her life (for example: grocery shopping) to be able to manage the graded activity they...
Where did you get that figure from?
The treatment is consideration to prevent deterioration. What code is there for PEM-ME, or ICC-ME?
Just found a great discussion involving Charles Shepherd and Ellen Goudsmit that's relevant here, I think it demonstrates my point about ME...
If he is claiming that the London criteria is properly defined ME, why did the ME Association keep using a pre-covid prevalence figures of 250,000...
Just looked at that paper and they're using the 2007 NICE guidelines criteria, so anybody with 6 months of chronic fatigue could be included.
They're happy to let everybody conflate the two concepts. I've never seen them mention in their research the harm of conflating ME with idiopathic...
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