Didn't know how to answer this poll, so didn't vote. But in the interest of documenting our symptoms for future reference, maybe even to be...
I have (tried). There've been two types of response, neither very helpful (though one doctor did some sort of stool test which come up clear): 1)...
I almost didn't watch this because the microbiome is something I'd put in the too-hard basket to be figured out in my lifetime, what with all the...
For any Danes here: ME Foreningen is running a survey, a version of one previously done in Norway. https://da.surveymonkey.com/r/YK5BJWJ
The tweet directs to the Stuff article by Dr Cathy Stephenson from earlier in the month, not to the two Herald articles. Isn't it great to have...
Constant bilateral tinnitus of mosquito pitch for the last few years, never stops. Possibly started around the time I relapsed from very mild to...
Agree. This looks great. Admittedly I've only managed to read the summary and the list of contents, and scrolled through bits of the rest, and...
That PressReader App must be the least user-friendly app ever developed to read anything! But I did manage to read the articles - the shortened...
You beat me to it @Hutan, posting the two Herald pieces. Does anyone here have a NZ Herald sub and is able to read them? FB wisdom has it that...
So do I understand this correctly, in a channelopathy the symptoms would happen immediately after overdoing it? Or do they start the next day,...
Very interesting interview. Thanks, Andy and the Biobank folks. I particularly like their emphasis on establishing nationally and internationally...
Those who suffer from chronic fatigue syndrome often face years of doubt from their medical providers. But now the physical hallmarks of the...
n=1 I have mild POTS all the time but it gets much worse during PEM. So I wouldn't be surprised if someone had it only during PEM. I've never had...
The Listener article did appear online on Noted. Thanks to some good work by the people from ME Awareness NZ the letters to the editor from the...
Going from bad to worse: big NZ GP conference happening in Rotorua this week. Speakers include the three we've been discussing here: Chris Kenedi,...
For some relief: article written by a GP plus a short video in the Dominion Post/Stuff today, maybe not perfectly perfect but sooooo much better...
Been trying to figure out what the best response would be. There's probably not much we can do about it now. The conference is over and the...
@Marylib My first thought was how can we get him deported. Not that our American members would appreciate having him back I suspect. But in the...
Heeeeellllp!!!! That man has swallowed Per Fink's ideas wholesale (towards the beginning of the video). Worse, he's influential. Reablement?!...
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