Bravo @JohnTheJack ! Little by little we're getting somewhere. Thank you. I can't even begin to imagine how you managed to find the strength,...
You're a star :thumbup:
Another interesting observation. It's what's missing in all of those severity scales. They all have something along the lines of "symptoms...
My experience is similar to @Trish's except that phase 3 is divided into two: a first wave of symptoms at 4 hours post-overexertion followed by a...
@mango :(:hug: On a lighter note: The parents of severely ill Marie Louise, Vibeke and Esben, are finalists in Denmark's Patient Award in the...
Anyone able to write a polite but firm and scientifically sound letter to the editor of the NZ Listener (I'm too badly crashed myself)? The May...
The article actually makes some good points outlining some problems in the field. Such as that if patients don't have an 'accepted' diagnosis...
Is anyone here able to explain McGregor's hypothesis in simple terms? I've watched the talk twice, with lots of pauses to read the slides and try...
Bump. And signed.
Update: Received a couple of replies, one from the editor and one from ANZMES, but no new info and no answers to my specific questions (what...
To do: write letters to MPs before May - tick (just: it's late on April 30th :D). 1/ To the Greens, suggesting that ME Awareness week could be a...
On a side note, and not immediately relevant to ME, here's another example of the versatility of exosomes. This comes from a newspaper article...
No, the sentence I quoted in post #117 is the sum total of what there was in the newsletter on that topic, and by the sound of it the newsletter...
Just wanted to say a big THANK YOU @Dx Revision Watch. With my current brain function I haven't got a dog's show of understanding what exactly it...
My vote is for @Hutan to write new guidelines for all our District Health Boards. This bit makes things tricky: ANZMES is the largest ME patient...
I must have missed (or forgotten?) that. Can you elaborate? What guidelines and what problems, other than that silly personality stuff, are there?
From the April 2019 newsletter of ME Information and Support (Otago and Southland) That's all I know. Does anyone here have more information...
That actually makes it worse. More expensive. Bigger waste of money. Yes, it's hard. Every time I read another general article about the evils of...
Article and short video in SunLive: When ‘the horrible monster’ called on Kaye...
First thought upon reading a DHB (I assume?) is considering this: they haven't been making their targets on diabetes or reduced hospital...
Separate names with a comma.
