@Colleen Steckel , as we have discussed before, here in the US, essentially no one was being diagnosed with ME before the creation of the...
I felt a bit frustrated that they don’t recognize that there have been millions of dollars of patient funded research studies for the past 30...
There are some good questions submitted jointly by ME Action and Solve in the link above. I’ll repost the link to just the letter here....
Yep - they will try to pass it as a separate bill.
My dream outcome for the intramural study is actually not that they restart it, but that something so intriguing comes out of the preliminary...
Sorry! I should have included the link, in case anyone wants to attend. https://sites.google.com/massmecfs.org/2021annualmeeting
Dr. Nath may have good information on the 23rd. [ATTACH]
It’s in the budget currently being considered by Congress. I would imagine that a lot of Dr Collins’s remaining time will be spent pushing this...
Fewer patients for sure, although it was never intended to be a large study. When the pandemic hit, all intramural studies at NIH were stopped....
If Congress passes this new program, the new Director could use it to make much more rapid progress in ME/CFS research. (This is from the NIH...
I have to disagree. Collins became Director in 2009. ME was sabotaged long before that. He did not do even remotely as much as we would have liked...
Lots of information here. https://www.nih.gov/news-events/news-releases/francis-collins-step-down-director-national-institutes-health
He’s been Director longer than any previous NIH Director. He has often spoken about getting back to his own research on diabetes. If he’s going to...
He’s not stepping down immediately. It’s at the end of the year.
I am so hoping that his successor knows anything at all about ME/CFS.
My onset was very rapid, but I can’t associate it with any variety of infection. The same was true for my daughter, 8 years later, when we were...
Is there and published research on the ALA-mercury fillings connection? Does anyone know what the negative effects are supposed to be? (I do take...
Because it was a closed meeting with information that has not been made public, Jaime has said that she can’t disclose any details. No one can. It...
Thanks for posting!
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