To be clear, CDC is not planning to use this report. Dr Unger at CDC has said publicly that it’s useless. The point when this review started years...
This is entirely anecdotal, but I had an appointment with my ME/CFS doctor last week and he had spoken with Dr Nath. Dr Nath said that after the...
Unless I am mistaken, the major ask for the increased funding is for a serious epidemiological study - something that we have needed for a very...
In an interesting coincidence, my niece works as an office manager for this researcher. She has told him lots about my disease experience - maybe...
Just checking - has it actually been shown to differentiate between people with ME/CFS and people with other diseases? If it is going to be used...
I may have missed some things, but I thought that the nanoneedle was basically a device that takes measurements to improve diagnosis of ME/CFS....
Thinking about this, I believe that the risk of suicide may be higher among people who get their hopes up about treatment after treatment that...
Another difficulty of not publishing is that no one is able to ask the hard questions that are necessary to make sure that research is solid....
This letter has been going around for a long time. It’s evidence of what a dreadful person and a poor scientist Straus is, so it’s part of the...
I vastly prefer Dr. Younger’s term “cognitive disruption”. My brain doesn’t feel foggy; it feels totally wrecked. It felt like using a well oiled,...
No argument from me - it was a terrible choice of a name.
And, just for the record, Straus wasn’t CDC Director. He was a researcher at NIH.
Older names are “grandfathered” in. In the US, going from CFS to ME is a name change. Just like they no longer allow diseases to be named after...
I understand that the British perspective is that you had a perfectly good name - ME - that was arbitrarily changed by a committee in the US to a...
Thank you!
It’s not just Whitney. It goes back to the beginning of OMF. And I do not mean it as a criticism - everyone has to raise money. It was meant as a...
Hi! Haven’t been here for a while - very bumpy year! I wish for the best of luck for this book. It may bring good attention to this disease. And I...
And Claudia corrected herself of Twitter. He said that we need 500 to 1000 researchers; not 500,000. It’s hard to catch all of the information on...
He’s not really a politician; he’s a neurologist whose primary interest is research on the brain. A Harvard Professor of Neurology before being...
No doubt about that!
Separate names with a comma.
