I think that proving deliberate malpractice is going to be very hard. Since there is no evidence that any treatment is useful, CDC can point to...
My own feeling is that Dr Unger is moving forward, but she is moving as slowly as humanly possible. I think that continued pressure from the...
There is actually no way to tell whether you were deliberately shut out of a call or if they just didn’t get to your call. I’m pretty sure that...
Absolutely. Everyone has their own opinion about where to donate.
I know. But having been funded in the past is no guarantee that your current research proposal is an excellent one. Even the best researchers can...
It’s probably just me, but I am very uncomfortable with funding research with GoFundMe. Where are the checks and balances? Where are the other...
Complete rubbish. I wouldn’t trust those results for a minute.
I do greatly appreciate the work that @Tom Kindlon and @Michiel Tack have done on this. It is clear that the diagnosis you receive depends more on...
The study isn’t designed to be open ended. The original study design was for a three year period. I wouldn’t expect the most severely ill to...
I do think that it is important to note that all of the patients that I know of who have participated in this effort have found it to be a...
I think that the work that OMF is going is a great step forward, but there are not even close to the number of researchers that we need looking at...
I agree - I have no problem saying that we are a special case. I generally say that they broke our research community and they have to fix it. And...
But where does he get funding for his other work? You are right in that NIH doesn’t like to find pilot studies. The ME/CFS community has been...
This baffles me entirely. All NIH grant proposals have a high rejection rate. The rate for ME/CFS grants is higher than the average at this point....
I’m thinking of things like this. https://www.nimh.nih.gov/funding/training/funding-opportunities-for-early-career-investigators.shtml Of course...
T I f this is true, I am very unhappy about that message. If not now, when? Funding for ME/CFS will only grow if people submit proposals. If the...
I have lots of issues with NIH, but they are very much aware of the lack of grant applications. The big question is what they are willing to do...
What I wish is that we could get input from current researchers about why the field is steadily shrinking at a time when the barriers to receiving...
I agree. CDC has said that it is expanding its long-running multisite study to include a study of pediatric patients.
I think that Dr Collins was referring to an act of Congress accompanied by funding rather that just appropriations language. And I think that it’s...
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