Absolutely right. We need a lot more work on operationalizing criteria. We are nowhere near where we should be on this. It’s essential for good,...
I’m just going to say that, here on the US side, there is a lot of disagreement about the history of this disease. I just read something a few...
@Michiel Tack , I don’t think that it would be appropriate for me to sign since I am involved in other areas of the Values and Policies...
Thanks for giving great context for your suggestions, @Trish . I completely agree about anyone in leadership of an organization giving suggestions...
Good job, @Michiel Tack ! I would respectfully disagree with your 2 additional statements, @Trish . Taking the second first, MEpedia has all of...
It has been posted repeatedly. Vastag is the husband of the co-founder of ME Action. I think that the difficulty of obtaining diagnoses may...
The issue was about the paper being US-centric. I was agreeing and just discussing the ramifications of the parallel timelines in the UK and here....
Without a doubt, it was US-centric. I don’t think that is necessarily a bad thing, because the timeline of this disease is very different here in...
It should be posted on YouTube soon, Nasim. I’ll keep my eyes open.
In the interest of fairness, I think that NIH has made a contribution to the forward motion with this disease. They haven’t done enough by a long...
My general statement about NIH and the research community is “They broke in; they need to fix it.” It’s time for unusual urgency.
I think that different researchers, even within the same network have different theories. You could see that at the conference. And none of the...
That’s one of the things that made the article seem very old to me instead of one that was recently written. And he didn’t discuss any of the...
I thought that Dr. Hanson’s talk was absolutely brilliant - one of the best that I have ever heard. Just wanted to point out that, as she said,...
Totally my own experience, but I took Kutapressin back in the early ‘90s also. Most of my support group friends were Dr Cheney’s patients and they...
You are right about NIH funding a percentage of applications, but that is by Institute rather than by disease. So the number of ME studies funded...
Looks like Dr. Komaroff’s article is reaching a large readership....
Copied I’m wondering - taking into account that all of the statistics for this disease are fairly unreliable since studies are small, definitions...
I’m wondering - taking into account that all of the statistics for this disease are fairly unreliable since studies are small, definitions differ,...
That has pretty much been Dr. Komaroff’s message for the past 30 years. I remember back in the ‘90s when he delivered that message to 1/4 of the...
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