The Sick times is hiring two part time writers, and accepting pitches for Commentary/analysis pieces on Long Covid. 400-1200$ is paid per piece....
This is going to sound horrible, but people in rich families getting ME/CFS can really change a lot for the average patient. As WE&ME shows,...
Hi @EmmaS302, thank you for sharing this. Unless I missed it, I think something useful to say would be to give members here an estimate of how...
I’ve shared this before but I think it is relevant in this thread...
Thanks for the really interesting and well-thought reponses Kitty and Jonathan. As for that quote you literally made me laugh out loud even...
I often hear the claim that the reason ME/CFS is neglected psychologised etc. is that we don’t have a biomarker for the disease. In my opinion, it...
Republicans blocking major sources of funding to “Cancer Moonshot”...
Atleast in my personal illness experience, when completely bedridden, no sound or light input, only liquid food etc. No confounding factors....
I think any model that explains cognitive PEM could explain sensory hypersensitivity through that same framework.
Yes, criteria for a plausible model becomes a whole lot more difficult if you consider the fact ME/CFS could be a collection of similar or related...
Another thing is the model needs to be able to explain how some people within the same disease category, can live a near normal life, while others...
I love the idea. Just as a thought, would a theory be false if it assumed we needed a trigger that encompasses immune activation from...
I wonder if trying to get Nath and Walitt to attend these kind of things would help them “get it” or if it is already a “lost cause”.
Is it a reply to criticisms they have faced which they judge as “unfair”, or are they brainwashed by the narrative that ME organisations are...
have they ever seen/read about someone with very severe ME. This just makes me sad :(
Hi, I couldn’t find a general thread to post this so I’m making a new thread. A small but in my opinion cool way to increase advoacy, an...
I know they took it from a patient’s quote but the “life back” headline bothers me a little, atleast seems to me to make the assumption people...
Edit: Full title of trial, led by Leicester University, UK: A phase IIa double blind, randomised placebo-controlled trial of Tocilizumab to...
That is really cool I hope it goes well :) This is probably not what you’re looking for but I read someone’s testimony on pheonix rising a month...
I remember reading quite a few “Functional Somatic Syndrome” studies funded by the DOD which included ME/CFS. Happy they are now funding the...
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