Yes Janet did exaggerate a lot. I think there is still some fair criticism though which is that not all cases of ME are post infectious and this...
Not sure if this fits into the thread but Janet Dafoe sent some harsh tweets about solve ME a couple days ago. [MEDIA] [MEDIA]
“How might we design and implement innovative solutions to improve the lives of those with Long COVID today?” Removing Wallitt and similar from...
Forgive this possibly very ignorant question but: Would it be accurate to say FND is basically a way to diagnose dysautonomia, whilst blaming it...
Is there anything we can learn from that? I looked into it a bit and chronic-lyme disease seems to be dismissed while post-treatment lyme disease...
Oh my bad yes thats what I mean (sorry english isn’t first language).
Sorry I don’t know if this is off topic for this thread but we have the opposite problem going on in Switzerland. ME/CFS is not a recognised...
I’m glad you figured it out. That sounds like it would have been really stressful and tough. I permit myself to ask if you would still consider...
(I couldn’t find a thread dedicated to IBS so making a new one). Based on my knowledge of ME I’ve always assumed IBS is some sort of disease or...
How have I never been shown this before; amazing resource. Thanks!!
Hi, I usually can only use my phone for a couple minutes every week or so but sleep deprivation and an unknown allergic reaction gave me lots of...
Huh since I am very severe too, maybe it has something to do with severity?
No way so the most notorious of these evil invisible hands behind the media people has funding links to BPS research, who would have guessed.
Hi Nellie, It is oxygen saturation in the blood :)
I’ve never seen this mentioned anywhere else but here goes: I track my spo2 levels all the time (curiosity I guess) and ive noticed something...
yeah they liked the content but thought the “style” of the website was outdated… (tells a lot about their priorities)
I noticed the app had a reading list where they had some newsletters and stuff about long covid and me. all of which are nice but no where near...
To be honest apart from a warning sign when I’m doing very poorly and get a very poor morning stability score, the main use of the app is...
How do they justify very severe cases I mean in the case of people like whitney or merryn crofts etc. Even just severe people who use bedpans and...
Oh my god thats the website I got referred to by the neurologist who told me I was “doing this to myself” to “ditch the wheelchair” and that my...
Separate names with a comma.
