Hi. I just wanted to share an essay my dad wrote that got included in a recent healthrising post. The part written by my dad is quoted below:...
To me if I had to explain PEM in imagery. It’s like I did a lot of exertion one day and the next day I wake up lying flat on the road. Everything...
It’s kind of frustrating to see so much long COVID data being generated with such loose diagnostic criteria. Imagine if they collected the same...
Except for perhaps overstating the CPET findings, and leaving out some symptoms/details for extremely severe (unable to communicate) type...
News Release from Swiss parliament (translated) On September 11, 2024, Federal Councillor [one of the leaders of the executive branch]...
n = 1. Tinnitus was a symptom I had never experienced before and started exactly at the same time as my first major ME crash. Now I get it...
I wonder if the complement system findings will be meaningful?
Was studying a related subject in uni when I got hit by the illness and had to drop out.
Here are the sources that are currently showing up: Every new S4ME weekly news in brief Trial by Error ME/CFS Research Review Thoughts about ME...
Hi, I find it is hard to keep up with the excellent blogs and community news in the ME community, so I programmed a webpage that automatically...
Excellent read thank you. I shared with family and they really enjoyed.
I know two people with rare autoimmune disease who were FND’d for a good half decade and believed the doc. I can’t remember where but I think I...
To me it seems the healthcare system worked exactly as the higher ups intended it to. Meave’s mistreatment is the result of people designing the...
All in all, despite the Miller article, the media coverage has been really good compared to what I would have expected. And there’s been so much...
This whole thread [MEDIA]
It seems the way things are going, long COVID is going to also count people with the sniffles for a couple weeks post infection. Hence the high...
Yes. If we have to find a correlation with age, in my very limited experience. Old doctors tend to be more empathetic, and willing to listen....
What about low dose apiprazole (abilify)? There’s been no randomised blinded trial but a retrospective study found results worth investigating...
Thinking about it. With the “inevitability” of death part, did the coroner just proclaim that some cases of ME can be “terminal”?
They say her death was inevitable as she couldn’t feed herself and NJ/PEG failed. They say they couldn’t consider TPN as risk of sepsis. If...
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