I don’t have the energy to look it up right now but I seem to remember reading about large studies controlled for various independent variables...
By the way you could make the S4ME mastodon account visible and followable from bluesky by using bridgy (free and open-source). All you have to...
Article in Swiss news about 12 year old with Long Covid who is unable to attend school (in german)...
Nice to meet you! Welcome :)
Perhaps a confusion of the vagus nerve (which I seem to recall going through the left ear) and a vein?
If that actually goes through, beats most ME studies who find something interesting in a tiny cohort and then never get replicated. Agree with...
The line between psychiatric and neurological seems extremely arbitrary.
I’m scared they’ll approve a couple beta blockers for post-covid POTS, figure out some specialised care for COVID related organ damage, conclude...
* in mice and fruit flies Interesting that they got the results using covid
https://bsky.app/profile/exceedhergrasp1.bsky.social/post/3kx3zy4bhkk2k From Bluesky: Jamie Seltzer announced she will be a panelist at the...
I think this was said in another thread, but it’s “shrödinger’s somatic symptom”. When it is used between professionals, it nearly always means...
But right now we’re basically throwing anything and everything at the wall. Maybe we should spend more resources looking for sticky things to...
Yep exactly. When I was bedbound, but still able to tolerate talking and light and such, I had care credits to have people help me with cleaning,...
Very happy to see you mentioning the “adrenaline dump” or “adrenaline rush” phenomenon a lot of us experience. It’s criminally underreported in...
Yep. For me when I hear too loud a sound or too loud a light. The symptoms I get are the exact same as if I’d just pushed myself too far...
I imagine you’re mostly aware, but the field of psychiatry along with psychology has a history of wrongly psychologising ME/CFS. So a lot of us...
It may be different for different people, but in the large majority of people I’ve talked to sensory sensitivities in severe ME is directly...
It really depends what your definition of pacing is. I’ve seen pacing used for so many things from “try to gradually increase your activity levels...
I do know that it is not unheard of for people on the milder end of the spectrum who have already lived a decade or more with the disease, to...
In relation to the LC is way more severe than ME point: To me it sounds like he’s more interested in covering the NIH than anything. He was just...
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