Anton's update, in part: "We have not accepted the healthcare director's reply and asked him to invite us to a meeting and also give us an...
I interviewed Holger's brother Anton and will publish on Monday -- the health director recently refused the petition -- so the possibility of...
That's my fear -- the ones who only read the headlines will assume CBT is good for Long Covid. I'd prefer the title was declarative: Unlikely CBT...
Institutionally embedded disease discrimination. Impedes: research funding, attracting researchers, producing research, treatment development,...
Great job Jonathan. It must've been an energy sacrifice to write. Thanks for doing that.
Thanks for your ultra persistence in our collective advocacy ultra marathon Suzy. Are new shoes in the cards?
Google translated: The Canadian Press MONTREAL - A new test developed by Montreal researchers is expected to improve the diagnosis and treatment...
Sounds like you're thinking that TORC1 may be chronically activated in ME? Fwiw, I'm a responder to rapamycin -- it has doubled my walking...
I just recorded an interview with a Long Covid patient -- he found the PACE studies and tried GET and it made him sicker -- he said other Long...
It was good to put a voice to your writings -- thanks for sharing....and the work you do @Tom Kindlon
Just in case it has any relevance to you, I remember reading an article about a woman (Jill Viles) who couldn't put on fat - she researched and...
Yeah, is it incompetence, or corruption? If Long Covid is not acknowledged, those patients will have challenges receiving disability from govt or...
It's paywalled, so only the 1st page is visible: https://www.sciencedirect.com/science/article/abs/pii/S2213219818304392?via%3Dihub
"We have presented evidence that patients with ISM exhibit a significant and intercorrelated rise in histamine and tryptase following exercise...
Bradykinin Hypothesis for Covid Any relevance to ME? I haven't looked for Bradykinin and ME research....
@Simon M If memory serves, Alain is involved in 5 recently funded Long Covid / ME studies - I think he said he was PI on 4 of them.
I interviewed Canadian long COVID patient Chandra Pasma - her husband has had ME for 15 years, so she knew what (not) to expect from health care...
Just had to share that I just had a Patient Safety meeting with 4 others that work as bureaucrats in health care, and 2 of them had no clue at all...
The clip ends with Garner saying "it's quite a terrifying experience".
We applied for some of the recent Covid research funding -- the executive committee is meeting in about a week so the potential Covid - ME...
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