I am looking. I have found another reference which is not quite the same. This one is from "Time for a Reality Check at the UK Department of...
Wherever I read about this I had seen the following: The ME Sufferers Bill was presented to the House of Commons by Jimmy Hood MP on 23rd...
Any letters to MPs asking specific questions about ME I think would get forwarded to Jeremy Hunt. MPs seem to send questions on to whoever is in...
the other lady was very good at wooly talking to fill time
good start to the week :)
set your email preferences so that anything from them goes straight into junk folder
maybe i didnt then and brain put 2 and 2 together and got 8!
I think I read Jeremy Hunt is supposed to be there. It will be interesting to see what he has to say. I had written to my MP recently about a few...
it starts just after 36 min in
I love Dr Tullers articles - they really make me hope that as a community we are still chipping away and getting results. It's like a giant...
I forgot - ice pack is the best at getting rid of pain. Horrible as its cold and that hurts but it really does take the pain away and reduce...
use a "Shoulders back" - you can buy one but it's easy to fashion your own from a wide crepe bandage. Also called posture supports. I find the...
It's nice to have some non ill people around as well so they can remember all of the stuff we have forgotten :)
What about Pilates or Yoga. Pilates helps with core muscles and posture and I don't think is very aerobically taxing. Even things like sitting on...
Spend 5 million on a study then someone leaves so therefore the data cannot be accessed any more. And this at a time when it is under scrutiny. I...
Would it be worth sending her the Dr Myhill stuff as although it's a bit ranty it does point out the legal challenges to the trial - also...
Back in 1988 there was an ME sufferers bill passed in parliament. One thing it said was that each year the department of health had to produce a...
thanks for the comments and I completely understand what everyone is saying. My consultant has said I am permanently disabled, have undergone all...
Does anyone know where to get a cpet 2 day test done in the UK? If it can be used to prove disability then it may be worth the relapse to then not...
Or are they saying that they do see a problem but they see it with the conclusions/results - in that the numbers reported were hugely inflated.
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