I have endometriosis as well. I'm in a pretty big self help group in my town and several women think they have "CFS". They have fatigue and lower...
I had an upper endoscopy without sedation, would not do it again (gagging, feeling of the endoscope inside your intestines. But people are...
What I find sad is that many of the difficulties that people with ASD are dealing with (e.g. anxiety, depression) might not have become that...
@lunarainbows Here in Germany we sometimes get told by endo specialists to take the pill as a vaginal suppository. It's supposed to cause less...
One more thing: Especially if you have deep infiltrating endometriosis have your kidneys checked as well via ultrasound. Endo can grow on the...
I'm glad you finally found the root of your problem, Luna, even though so late as so many women with endometriosis. Not sure if I have already...
Yes you need to try and educate them in order for them to help you (or rather not harm you) and at the same time really make sure you don't look...
They've been putting themselves in the "dirty corner" with pseudo science. No outside help needed.
A common cause for chest pain that can even feel like a heart attack is acid reflux. Might easily be dismissed as a cause of nccp.
Maybe "attention economy" is a better word. Sick people have to take part in it and that is just wrong. I want to be a patient, not an activist.
This is in no way any criticism towards the ill that seek for help - they did what was necessary survive. In general though it's worrysome that...
I've been taking it for 4yrs for headaches. I have never withdrawn from it completely but never had trouble reducing the dosage when possible....
From what I understand he is on Twitter and a doctor that has had Long COVID (Dr Anna Brock*) reached out to him when she heard his story. With...
No scam, he's a well known patient (advocate). I don't know why the slow reveal, maybe to give the original article more traffic? He had...
Same for me. There are different forms. Some have cysts, they are easy to see. As well as adenomyosis (endometriosis in the Uterus, thickens the...
I'm glad it wasn't too bad! Just as an information though, endometriosis often isn't detectable in an ultrasound. You need a very well trained...
Yes, the neurologist ist Prof. Kleinschnitz. He's doing a lot of psycho propaganda with a bad study and a loud voice :(
What he does is just despicable. He's pandering towards the yellow press and brags about publications in MSM (instead of journals) on Twitter. I...
Not painful, depending on the angle sometimes a little uncomfortable in my experience.
The most important thing would be to address PEM. To give health care workers the knowledge of how to spot it and, if a patient is presenting with...
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