The pattern is more complicated for me and it's about degree and pattern of change not absolutes or high being good low being bad. I have noticed...
What I don't understand is that from the wording of the article alone he must have expected there to be lots of complaints so why would he want to...
Maybe I've been unlucky but, excluding my actual private ME specialist, I can't actually think of any Dr I've met who *doesn't* think it...
Thanks. We're attempting the complaint process escalation but not hopeful as ICS is pretty "anti ME" as I have heard, this even though the Dr has...
I'm on this since about 9 months. Zero side effects I can notice and I am top end of severe and med sensitive. It works a treat. Getting off to...
Didn't Florence Nightingale famously get ME/CFS (as far as we can tell from historic symptom descriptions and past diagnostic labels) and other...
I'm homebound as severely affected and most of the answers don't apply. I don't mask for breathlessness reasons myself. I have ask my PA to mask...
I guess it depends on show bad the old style service is. I was gaslight terrible by the former Norfolk and Suffolk service and they didn't even...
Answer to my questions received on 25th Sept 24 Dear Ms Stuart Clarke Further to your question for our board meeting today, I am emailing to...
ICB Board Question So I started investigating the Norfolk ICB board online and discovered the public have the right to ask questions at their...
Sadly I'm a lone voice here and it all feels very fruitless. What little hope there is rests in your amazing work over the border.
Moved post Well. Re the 3 intra Norfolk ccgs. I have the misfortune to live right on the border of 2 of the 3 Norfolk services (my home in one...
Since 2021 Norfolk and Waveney ICB split with Suffolk which is now commissioning a new NICE compliant service with NE Essex as SNEE. This post is...
I really hope your trailblaizer project works out. N&W claim to be watching.
@admin. Given that Norfolk and Waveny have split from Suffolk and NE Essex and the former aren't cooperating with a nice compliant...
Yes it's a great shame there is not more transparency as there is in other countries. It would a be powerful exercise. I do know of at least one...
I know there are challenges atm but I guess it depends on the time period you look at. It's down from a pre pandemic peak when the centres of...
I've never heard of it but it 100% applies to me. With one very notable exception being contracting viral meningitis during surgery - which...
Great work @Initial Conditions I agree it would be valuable to map this against one or a group of useful comparators. Then it would be great to...
How is Long Covid being coded on Snowmed in the UK currently? Has it been placed under post viral conditions like ME or elsewhere? I heard the...
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