What's EDM? I live in Norfolk and Waveney. Quadram is just research. We have a very crappy community "specialist service" here with 4 group...
I know that this is unsubstantiated but I find this a very concerning move by the BPS advocates. At the moment PEM is what protects patients from...
I think the term ME has evolved to mean something other than the original use and that's OK. I suspect the majority doctors are not aufait with...
Anecdotally, I made butyrate friendly dietary changes and took a butyrate producing probiotic strain using a (unproven of course) stool sample...
I agree the test needs sufficient validity but think we are where we are and because of the BPS stigmatisation a biomarker is critical for large...
I was sick as a dog on it, it caused hideous intolerable migraines when I am not remotely prone to them. Never again. This is a very problematic...
Is FND genuinely a valid separate entity and comorbidity? I don't really understand the similarity and differences of FND to ME? Isn't this a...
I'm not sure about the best solution and it's a slightly different requirement (@ mod this may need moving) but a meta paper type exercise that...
Things that put me off. Not feeling I have good enough scientific understanding to contribute meaningfully Not feeling I have good enough...
This is so disturbing. There's such an obvious answer to the accusatory title and for that to be ignored. :banghead:
My ME actually progressed in severity due to contacting viral meningitis and spent a week in hospital with it. But nurses still kept opening the...
ME too, but I do find the term "fatigue" inaccurate and unhelpful as in practice (at least in my moderate and severe states) it's a fundamental...
Looks like they're recruiting at point of surgery. I I like the fact it's using wearables. It will be interesting to see if data on ME as a...
That weird. I have a copy of this that states it's $15.5billion. I wonder which one is the latest version...
Yes I think that would be a very interesting extension. You would expect the ME specific indicators in that Cure ME cohort, which includes severe...
I thought this press release including "Up to 18 new Commercial Research Delivery Centres (CRDCs) will be established across the 4 nations to...
Great it's been acknowledged and is being looked at -well done Trish !
Brilliant letter well done.
Is Cornell the only remaining ME/CFS Centre of Excellence now then? I heard it said that the State funded Centres of Excellence model hasn't...
Yes although zero of my healthy friends are in my n=1 sample, so it is a very marked split. I'm very much the odd one out. It would be good to see...
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