I'm not remotely bendy but lots of my MEep friends are. I suspect it is a distinct phenotype. You could envisage either a potentially different...
Good suggestion are you in touch with them?. They are looking for input and ideas I think.
I voted yes solely because of Rob Wust. Not familiar with the other studies mentioned. I do think there are signs of getting more traction and...
This is far better you should stick that in a word temple and publish it..
I rate Sonja alot, from what I'd seen she was a canny operator so this sort of stuff being sponsored by AfME really worries me.
Omg what an awful document. I would not let my Dr near this as it would just confirm his prejudices about ME. I want something that rejects that...
I don't think this is particularly helpful at this early stage. We need to be asking for a collaborative structured solution to address the...
I do get the dilemma. But ME is complex and we need to improve QoL while we wait for science to make more headway as that's going to take years....
. I feeling exactly the same. My o/h struggles to understand how it still burns me up or the trauma after effects. I've worked a lot on myself...
Er hasn't he heard of Whitney and Maeve and Merrin and everyone ??? Talk about chucking patients under a bus. First effort preference then this....
He's not wrong. I wonder if anyone will rise to the challenge (and be able to extract money from funders for it)
What secret texter, sorry? do you mean the Good Law are in cahoots with BPS school people ?
Totally. Just to clarify I wasn't remotely suggesting any pressure to do so and my empathy and thoughts are with the family. This comment was in...
I wonder if it's worth putting Sean and Sarah in touch with the Good law project given the wider good at stake here.
I'm finding an extra low dose combo of both good. LDA helps brainfog and pem but sadly no physical stamina gain, LDN lessens pem and pain. But...
I would agree. That said one of my worries is that the dose tried is too high or inflexible for many participants. I know I am in the minority...
Yes I thought that. The explainer one with the whistleblower Clinician commentary about the policy maker generation - linked again below for...
I wonder if an appeal or a civil hearing might tease this nuance out where someone can get cross examined better but it would be an awful lot for...
But interestingly even that varies longtitudinally. For example I had gland swellings and sore throats constantly during the first 10 -15 years or...
I agree we'll likely only get a chance once, when we have a stronger lead on pathological causation. But perhaps once we have that lead you could...
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