I saw somewhere (MEA I think) that prior to the election they were just starting a report into severe ME which could be important for policy...
Very interesting. He attended the PEM workshop organised on Eventbrite by Ian Bruce when he chaired the Delivery plan Research Working Group. That...
Confirmation the Delivery plan will be finalised and published. https://questions-statements.parliament.uk/written-questions/detail/2024-07-29/HL454
Government commits to publishing the delivery plan! Comments Ring Fenced Funding for a condition is "not usual practice"...
Thank you for the explanation I had two episodes of 6 month fatigue/malaise in my early twenties after nasty viruses, at least one of which was...
I notice that immediately before the ME/CFS term in the coding is Post viral fatigue syndrome How does that differ from ME CFS ? Why isn't it...
@Hutan Re hysteria - I just was referring specifically to the confusing comment saying there was mass hysteria by the Dr's treating the immediate...
I'm sure you're right but that's a very fine distinction one that many won't necessarily grasp when something medical and already subject to...
I'm a bit confused by the debate around medical hysteria? I thought that hysteria implied an "in the moment" panic, loss of reason and crazy...
This is probably the perfect reply to post.!
There do seem to be a very small number of mostly younger, recently ill, mild grade people who claim to benefit (based on the ANS recovery...
Will be nice whenever the ME/CFS results for this are shown. Sounds like he's done the scans already.
Yes it felt like a staged stock answer to deliberately undermine. Its difficult as the general public cannot possibly grasp the full history of...
A Scottish piece shared by ME Association today. The 1 cleverly worded comment is presumably a BPS proponent and criticises it for stigmatising...
A combined lower dose Aripiprazole and lower dose Naltrexone trial. Gradual titration up but to patient tolerated maximum to allow for...
I suspect the overlap is much higher than reported figures. Typically Endometriosis only gets diagnosed fairly late, it's predominantly still...
The MEA mentioned that the Isle of Man has a combined service and is asking for patient views on social media. If it was adequately staffed for...
Yes, I wouldn't disagree. I meant my question in the context of wondering whether she is likely to somehow just think this an innocent isolated...
Hi, I'm severe (top end) so not following this blow by blow but have read the mainstream media coverage (including the two BPS articles ironically...
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